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FASD Diagnostic Telemedicine Resource

Award Number: U24AA014815
ORGANIZATION: NATIONAL INSTITUTE ON ALCOHOL ABUSE AND ALCOHOLISM
OPDIV: NIH
AWARD CLASS: COOPERATIVE AGREEMENT
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 09/15/2022
PERIOD OF PERFORMANCE END DATE: 04/30/2027

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FASD Diagnostic Telemedicine Resource - Project Summary Prenatal alcohol exposure is estimated to impact 1-5% of children in the US alone. Yet, many individuals who have been exposed prenatally to alcohol and suffer from fetal alcohol spectrum disorders (FASD) fail to be recognized. This failure is due, in large part, to a paucity of specialized clinics and expert dysmorphologists who are trained to identify FASD. Access to appropriate diagnostic expertise is particularly limited in remote areas. Unfortunately, if individuals with FASD are not recognized and diagnosed, they do not receive critically needed services nor can they access potential interventions early in life, when intervention is most likely to be effective. The CIFASD5 Diagnostic-Telemedicine Resource (DTR) will ensure consistent and accurate assessment of the physical characteristics of FASD across the CIFASD research sites. In addition, the DTR will address the critical need for increased diagnostic capacity through training of non-expert practitioners across CIFASD5 sites using telemedicine-based methods. In the previous CIFASD4 iteration, telemedicine approaches were tested for this purpose in a small sample of clinicians and found to be an effective method for training and monitoring of new examiners. In CIFASD5, this method will be extended to multiple sites and be employed in the evaluation of over 1,800 children and adults. However, telemedicine alone is insufficient to expand capacity and ensure consistency and accuracy of diagnosis. To that end, several novel eHealth tools have been developed to assist in the detection of physical features associated with prenatal alcohol exposure. These tools hold promise in providing simple and efficient ways to screen and identify FASD. These include MorpheusQ, a smart-phone based app that automates facial feature detection; Face-to-Gene, a 2D facial image diagnostic aid used by clinical geneticists to screen for potential syndromes; and 3D facial image signatures. These tools are scalable and have the potential to improve screening and diagnosis across the globe, even in remote areas, such as in Alaska. However, the diagnostic accuracy of these tools needs to be systematically compared to standardized dysmorphological exams. It is essential to determine whether eHealth tools can effectively replace and/or improve traditional exams before they are widely implemented.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = $348,448 )
2024	2024	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	21	5/10/2024	NON-COMPETING CONTINUATION	$348,448
														Subtotal = $348,448

Issue Date FY: 2023 ( Subtotal = $355,148 )
2023	2023	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	20	6/12/2023	NON-COMPETING CONTINUATION	$355,148
														Subtotal = $355,148

Issue Date FY: 2022 ( Subtotal = $370,438 )
2022	2022	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	19	9/12/2022	COMPETING CONTINUATION	$370,438
2022	2021	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	001	18	9/12/2022	NON-COMPETING CONTINUATION	$0
														Subtotal = $370,438

Issue Date FY: 2021 ( Subtotal = $262,217 )
2021	2021	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	18	5/19/2021	NON-COMPETING CONTINUATION	$262,217
														Subtotal = $262,217

Issue Date FY: 2020 ( Subtotal = $265,455 )
2020	2020	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	17	5/21/2020	NON-COMPETING CONTINUATION	$265,455
														Subtotal = $265,455

Issue Date FY: 2019 ( Subtotal = $294,939 )
2019	2019	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR DEPT 621	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	002	16	9/4/2019	SUPPLEMENT FOR EXPANSION	$68,969
2019	2019	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR DEPT 621	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	001	16	6/3/2019	NON-COMPETING CONTINUATION	$225,970
2019	2018	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR DEPT 621	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	15	11/14/2018	NON-COMPETING CONTINUATION	$0
														Subtotal = $294,939

Issue Date FY: 2018 ( Subtotal = $201,221 )
2018	2018	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR DEPT 621	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	15	5/15/2018	NON-COMPETING CONTINUATION	$201,221
														Subtotal = $201,221

Issue Date FY: 2017 ( Subtotal = $201,222 )
2017	2017	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR DEPT 621	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	14	7/6/2017	COMPETING CONTINUATION	$201,222
2017	2017	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR DEPT 621	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	002	14	9/14/2017	COMPETING CONTINUATION	$18,645
2017	2016	UNIVERSITY OF CALIFORNIA, SAN DIEGO	9500 GILMAN DR DEPT 621	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	001	13	9/14/2017	EXTENSION WITH OR WITHOUT FUNDS	-$18,645
														Subtotal = $201,222

Issue Date FY: 2016 ( Subtotal = $235,826 )
2016	2016	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	13	5/13/2016	EXTENSION WITH OR WITHOUT FUNDS	$235,826
														Subtotal = $235,826

Issue Date FY: 2015 ( Subtotal = $228,750 )
2015	2015	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	12	5/4/2015	NON-COMPETING CONTINUATION	$228,750
														Subtotal = $228,750

Issue Date FY: 2014 ( Subtotal = $242,719 )
2014	2014	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	11	5/21/2014	NON-COMPETING CONTINUATION	$242,719
														Subtotal = $242,719

Issue Date FY: 2013 ( Subtotal = $232,709 )
2013	2013	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	10	5/31/2013	NON-COMPETING CONTINUATION	$232,709
														Subtotal = $232,709

Issue Date FY: 2012 ( Subtotal = $234,410 )
2012	2012	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	001	9	8/13/2012	COMPETING CONTINUATION	$0
2012	2012	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	9	8/9/2012	COMPETING CONTINUATION	$234,410
														Subtotal = $234,410

Issue Date FY: 2011 ( Subtotal = $155,637 )
2011	2011	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	8	7/22/2011	NON-COMPETING CONTINUATION	$155,637
														Subtotal = $155,637

Issue Date FY: 2010 ( Subtotal = $170,708 )
2010	2010	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	001	7	9/8/2010	SUPPLEMENT FOR EXPANSION	$7,000
2010	2010	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	7	7/20/2010	NON-COMPETING CONTINUATION	$163,708
														Subtotal = $170,708

Issue Date FY: 2009 ( Subtotal = $162,359 )
2009	2009	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	6	7/21/2009	NON-COMPETING CONTINUATION	$162,359
														Subtotal = $162,359

Issue Date FY: 2008 ( Subtotal = $159,503 )
2008	2008	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	5	8/1/2008	NON-COMPETING CONTINUATION	$159,503
														Subtotal = $159,503

Issue Date FY: 2007 ( Subtotal = $153,891 )
2007	2007	UNIVERSITY OF CALIFORNIA-SAN DIEGO	9500 GILMAN DRIVE	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	4	9/29/2007	COMPETING CONTINUATION	$153,891
														Subtotal = $153,891

Issue Date FY: 2004 ( Subtotal = $186,883 )
2004	2004	UNIVERSITY OF CALIFORNIA-SAN DIEGO	Q027	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	2	8/30/2004	NON-COMPETING CONTINUATION	$186,883
														Subtotal = $186,883

Issue Date FY: 2003 ( Subtotal = $280,700 )
2003	2003	UNIVERSITY OF CALIFORNIA-SAN DIEGO	Q027	LA JOLLA	CA	92093	SAN DIEGO	USA	Alcohol Research Programs	000	1	9/30/2003	NEW	$280,700
														Subtotal = $280,700

Grand Total All Awards = $4,743,183

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FASD Diagnostic Telemedicine Resource

Award Number: U24AA014815

ORGANIZATION: NATIONAL INSTITUTE ON ALCOHOL ABUSE AND ALCOHOLISM

OPDIV: NIH

AWARD CLASS: COOPERATIVE AGREEMENT

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 09/15/2022

PERIOD OF PERFORMANCE END DATE: 04/30/2027

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