Autism Secondary Data Analysis Program - PROBLEM: Autistic females represent a large proportion of the U.S. population. They experience significant negative health outcomes, relative to both autistic males and non-autistic females. In the general population, adolescence and young adulthood (age 12-30) are critical periods for receipt of obstetrics and gynecology (OB-GYN)-related healthcare. During this period, however, autistic females are unlikely to receive OB-GYN care. GOAL(S) AND OBJECTIVES: This project aims to: 1) Align the project with the Interagency Autism Coordinating Committee’s Strategic Plan Objectives, MCHB’s strategic plan, and Blueprint for change (Goal 1); 2) Generate new evidence to address the needs of autistic populations (Goal 2); 3) Enhance the evidence and strategies for promoting health for autistic children and adolescents (Goal 3); 4) Contribute to a broad public health impact by improving patient engagement and care delivery through studies that are generalizable and replicable (Goal 4); and 5) Prepare an ESI to successfully obtain and complete federal research awards (5). To achieve these goals, we will pursue the following objectives: Ensure the project aligns with the IACC, MCHB, and Blueprint for Change priorities (1.1 – 1.3); Convene and promote collaboration among a multi-site lived and professional expert advisory board (2.1); Complete a secondary data analysis of Medicaid Claims data (2.2); Disseminate deliverables to ensure translation to academic and lay audiences (3.1, 4.1, 4.2); Implement an Evaluation plan to ensure project effectiveness (4.3); and Promote mentorship and the development of an NIH R03 application (5.1, 5.2). PROPOSED DATA SETS AND TARGET POPULATION(S): To achieve our goals and objectives, we will utilize longitudinal Medicaid claims data (i.e., i.e., MAX from 2008-2015 and TAF [T-MSIS Analytic File] from 2017-2019). The target population for this research features autistic female adolescent and young adult (aged 12 – 30) Medicaid beneficiaries (with and without intellectual impairment), as well as their non-autistic female and autistic male counterparts. PRODUCTS: We will produce: 1) a secondary data analysis of Medicaid claims data; 2) two peer-reviewed manuscripts; 3) an NIH R03 application; and 4) dissemination materials for academic and lay audiences. EVALUATION: We will evaluate the effectiveness of our inputs and activities across this initiative through progress reports and submitted and disseminated products. KEY TERMS: Health, Autism Spectrum Disorders, Youth with Special Health Care Needs Transition to Adulthood, Persons with Special Health Care Needs, Young Adulthood (19 – 25 years), Adolescence (12 – 18 years).
