Saturday, December 21, 2024
12/21/2024
PROJECT SUMMARY/ABSTRACT International Lowe Syndrome Symposium; Aguilar (PI) The International Lowe Syndrome Symposium, scheduled for November 2024 at Purdue University, aims to transform the landscape of Lowe Syndrome (LS) research and care. This rare genetic disorder, marked by early mortality and a lack of effective treatments, demands urgent attention and collaborative efforts. The symposium will unite an international assembly of scientists, clinicians, patients, and families, fostering an inclusive and multidisciplinary approach to understanding and treating LS. Our primary goals are to advance scientific research, enhance clinical practices, promote diversity and inclusivity in medical research, and empower junior investigators in the field of LS. A focus on diversity, equity, and inclusion ensures broad representation and accessibility, enhancing the symposium's impact across various communities. The Indiana Clinical and Translational Sciences Institute (Indiana CTSI) infrastructure will be used as a vehicle to engage a regional and national network, in order to attract a broad range of participants to the symposium. A central initiative is the "Bring a Junior Colleague" program, supported by R13 funding, which is designed to engage and develop emerging scientists and clinicians. This includes a “Poster Competition” to encourage innovative research and provide young investigators with a platform for visibility and professional growth. The 2-day meeting agenda also includes current updates from key investigators, clinicians and patient families through talks and panel discussions. The symposium's outcomes are expected to be far-reaching: sharing cutting-edge research, establishing strong networks for ongoing collaboration, raising public awareness, and identifying new translational opportunities. Ultimately, the symposium seeks to improve clinical outcomes and enhance the quality of life for those affected by Lowe Syndrome. In summary, the International Lowe Syndrome Symposium stands as a crucial convergence point for accelerating progress in LS research and treatment, advocating for patients and families, and cultivating the next generation of dedicated researchers.
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