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Developing a Genomics Literacy Measure

Award Number: R03HG008809
ORGANIZATION: NATIONAL HUMAN GENOME RESEARCH INSTITUTE
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 07/01/2016
PERIOD OF PERFORMANCE END DATE: 01/31/2018

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Developing a Genomics Literacy Measure - ¿ DESCRIPTION (provided by applicant): Genomic literacy plays a critical role in informed decision-making for genomic testing, in the implementation of the test and the accurate interpretation of the results, and in our policy making process as a society. The National Human Genome Research Institute's 2011 vision for the future of genomic medicine specifically cites the need for both providers and consumers to achieve genomic literacy. Yet despite its importance, there is no effective tool for assessing genomic literacy. Deploying a common, rigorously validated measure will reduce duplicated effort among study groups, increase the quality of genomic literacy data, and enable comparison and meta-analysis. Existing literacy measures are focused on genetics as opposed to genomics, do not incorporate modern genomic technologies or are only informative over a limited range of examinee knowledge levels. In this pilot project, our aim is to define, test and preliminarily validate an item bank o genomics knowledge questions. First, we will assemble an up-to-date and comprehensive list of genetics and genomics concepts that will comprise the content domain and refine that list via focus groups with stakeholders. Then, we will assemble an item bank of 200 multiple-choice questions, and refine those items via individual cognitive interviews. We will test the item bank in a diverse cohort (500 examinees per item) drawn from the general public, students in genomics courses, participants in translational genomics studies and life-science professionals. Using those responses, we will perform a detailed psychometric analysis and calibration of the item bank using item response theory, preliminarily validate measure performance and perform simulations to test the suitability of computer adaptive testing in this domain. The item bank we develop and analyses we perform in this project will inform the development of a new, robust and valid genomics literacy measure to assess population genomic literacy and evaluate the pedagogical effectiveness of genomics educational interventions.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2019 ( Subtotal = -$37,565 )
2019	2017	PRESIDENT AND FELLOWS OF MIDDLEBURY COLLEGE	38 COLLEGE ST	MIDDLEBURY	VT	05753	ADDISON	USA	Human Genome Research	000	3	5/29/2019	NON-COMPETING CONTINUATION	-$37,565
														Subtotal = -$37,565

Issue Date FY: 2017 ( Subtotal = $57,739 )
2017	2017	PRESIDENT AND FELLOWS OF MIDDLEBURY COLLEGE	38 COLLEGE ST	MIDDLEBURY	VT	05753	ADDISON	USA	Human Genome Research	002	3	1/20/2017	NON-COMPETING CONTINUATION	$57,739
2017	2016	PRESIDENT AND FELLOWS OF MIDDLEBURY COLLEGE	38 COLLEGE ST	MIDDLEBURY	VT	05753	ADDISON	USA	Human Genome Research	001	2	11/7/2016	CHANGE OF GRANTEE / TRAINING INSTITUTION / AWARDING INSTITUTION	$8,901
2017	2016	ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI	ONE GUSTAVE L LEVY PL	NEW YORK	NY	10029	NEW YORK	USA	Human Genome Research	000	1	11/7/2016	NEW	-$8,901
														Subtotal = $57,739

Issue Date FY: 2016 ( Subtotal = $69,916 )
2016	2016	ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI	1 GUSTAVE L LEVY PL, BOX 3500	NEW YORK-NEW YORK	NY	10029		USA	Human Genome Research	002	1	6/30/2016	NEW	-$60,869
2016	2016	ICAHN SCHOOL OF MEDICINE AT MOUNT SINAI	1 GUSTAVE L LEVY PL, BOX 3500	NEW YORK-NEW YORK	NY	10029		USA	Human Genome Research	000	1	2/21/2016	NEW	$86,869
2016	2016	MIDDLEBURY COLLEGE	OLD CHAPEL BUILDING	MIDDLEBURY	VT	05753	ADDISON	USA	Human Genome Research	001	2	6/30/2016	CHANGE OF GRANTEE / TRAINING INSTITUTION / AWARDING INSTITUTION	$43,916
														Subtotal = $69,916

Grand Total All Awards = $90,090

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Developing a Genomics Literacy Measure

Award Number: R03HG008809

ORGANIZATION: NATIONAL HUMAN GENOME RESEARCH INSTITUTE

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 07/01/2016

PERIOD OF PERFORMANCE END DATE: 01/31/2018

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