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Family care to nursing home residents and state essential caregiver programs during 2020-2021: impact on dementia care outcomes

Award Number: R01AG082992
ORGANIZATION: NATIONAL INSTITUTE ON AGING
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 09/01/2023
PERIOD OF PERFORMANCE END DATE: 08/31/2027

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Family care to nursing home residents and state essential caregiver programs during 2020-2021: impact on dementia care outcomes - Project Summary/Abstract Approximately 6.5 million older adults in the United States currently live with Alzheimer's Disease or Related Dementia (ADRD) and this number is projected to increase to 12.7 million by 2050. Most persons with ADRD require nursing home (NH) care during the course of their illness, and about 70% of them die in NHs. Among NH residents, almost 50% have a diagnosis of ADRD. The risk of dementia is higher for racial/ethnic groups other than non-Hispanic whites, and people in these groups with ADRD experience higher levels of cognitive impairment and higher prevalence of behavioral and psychiatric symptoms of dementia. Together, these increase the risk of NH placement for these older adults, and the level of NH care they need after placement. However, strong evidence suggests that these NH residents with ADRD receive less adequate care (e.g. more feeding tube use) and have worse health outcomes (e.g. higher hospitalization rate) than non-Hispanic white ADRD residents. Informal care, or unpaid care provided by family members or friends, is common for NH residents with and without ADRD. However, family care to NH residents was seriously disrupted due to extended NH lockdown. To mitigate the disrupted family care,18 states established essential caregiver (EC) programs during 2020-21 which allowed NH residents to have in-person access to family or other caregivers under national public health emergency. This study proposes to determine (1) the impacts of informal family care on the health outcomes of NH residents with and without ADRD, their family caregivers, and residents with ADRD in different racial/ethnic groups; and (2) the associations of state EC programs with informal caregiving during 2020-21, and with resident and family caregiver health outcomes. This project will employ the 2008-22 Health and Retirement Study (HRS) survey data and other existing data files to address study aims. Findings of the study will provide critical insights into the role of family caregiving to the health of NH residents with ADRD and their families, and into the potential impact of state efforts to foster family caregiving in NHs during future public health emergencies.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $355,824 )
2026	2026	UNIVERSITY OF ROCHESTER	910 GENESEE ST	ROCHESTER	NY	14611	MONROE	USA	Aging Research	000	2	9/11/2026	EXTENSION WITH OR WITHOUT FUNDS	$355,824
														Subtotal = $355,824

Grand Total All Awards = $355,824

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Family care to nursing home residents and state essential caregiver programs during 2020-2021: impact on dementia care outcomes

Award Number: R01AG082992

ORGANIZATION: NATIONAL INSTITUTE ON AGING

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 09/01/2023

PERIOD OF PERFORMANCE END DATE: 08/31/2027

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