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Family caregivers in later life: A longitudinal study of well-being and mental health in families of adults with autism and developmental disabilities

Award Number: R01AG080599
ORGANIZATION: NATIONAL INSTITUTE ON AGING
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 03/15/2023
PERIOD OF PERFORMANCE END DATE: 02/29/2028

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Family caregivers in later life: A longitudinal study of well-being and mental health in families of adults with autism and developmental disabilities - Project Summary/Abstract This project aims to improve our ability to support the resilience of family caregivers of adults with autism and developmental disorders as the caregivers move into later life. Based on a 30 year longitudinal study that prospectively followed families from when their children were referred for possible autism or developmental delays, we will use a social convoy model to investigate trajectories of social connectedness and isolation over the next five years as they affect caregivers’ mental health and well-being. This model describes changes in social connectedness over time that may increase vulnerability or reduce the effects of caregiver burden. We examine additional interacting factors specifically related to family caregiver well-being and mental health in families with adult children with developmental disabilities. We will use questionnaires, app-based diaries, face to face interviews and exploratory measures of biological and cognitive aging over the course of 5 years during which our sample is in their 60’s, linked to rich behavioral data from the past 20-30 years. Our objective is to identify life milestones, such as retirement and the adult child’s moving out, as well as caregiver coping strategies that allow us to support well-being and mental health in family caregivers as they age.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2025 ( Subtotal = $636,768 )
2025	2025	UNIVERSITY OF CALIFORNIA, LOS ANGELES	10889 WILSHIRE BLVD STE 700	LOS ANGELES	CA	90024	LOS ANGELES	USA	Aging Research	001	3	6/18/2025	NON-COMPETING CONTINUATION	$51,979
2025	2025	UNIVERSITY OF CALIFORNIA, LOS ANGELES	10889 WILSHIRE BLVD STE 700	LOS ANGELES	CA	90024	LOS ANGELES	USA	Aging Research	000	3	3/14/2025	NON-COMPETING CONTINUATION	$584,789
														Subtotal = $636,768

Issue Date FY: 2024 ( Subtotal = $655,131 )
2024	2024	UNIVERSITY OF CALIFORNIA, LOS ANGELES	10889 WILSHIRE BLVD STE 700	LOS ANGELES	CA	90024	LOS ANGELES	USA	Aging Research	000	2	6/27/2024	NON-COMPETING CONTINUATION	$655,131
														Subtotal = $655,131

Issue Date FY: 2023 ( Subtotal = $655,145 )
2023	2023	UNIVERSITY OF CALIFORNIA, LOS ANGELES	10889 WILSHIRE BLVD STE 700	LOS ANGELES	CA	90024	LOS ANGELES	USA	Aging Research	000	1	3/14/2023	NEW	$655,145
														Subtotal = $655,145

Grand Total All Awards = $1,947,044

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Family caregivers in later life: A longitudinal study of well-being and mental health in families of adults with autism and developmental disabilities

Award Number: R01AG080599

ORGANIZATION: NATIONAL INSTITUTE ON AGING

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 03/15/2023

PERIOD OF PERFORMANCE END DATE: 02/29/2028

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