Tuesday, December 9, 2025 12/9/2025

Tracking and Engaging Disconnected Long-Term Survivors of Childhood Cancer to Improve Adherence to Evidence-Based Screening Guidelines

Award Number: P30CA036727
ORGANIZATION: NATIONAL CANCER INSTITUTE
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 09/05/1997
PERIOD OF PERFORMANCE END DATE: 08/31/2026

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Tracking and Engaging Disconnected Long-Term Survivors of Childhood Cancer to Improve Adherence to Evidence-Based Screening Guidelines - Project Summary This application is being submitted in response to the Administrative Supplements on Long-term Cancer Survivorship. Our proposed project aims to identify and re-engage adult survivors of childhood cancer who have transitioned from pediatric survivorship care to primary care but are no longer connected to structured survivorship follow-up. The project leverages and builds on institutional data revealing that over 59% of transitioned survivors are lost to follow-up at Nebraska Medicine and the Fred & Pamela Buffett Cancer Center (BCC).The project will use a mixed-methods approach, integrating retrospective EHR data, structured surveys, and qualitative interviews to understand disengagement patterns, evaluate adherence to Children’s Oncology Group (COG) Long-Term Follow-Up (LTFU) guidelines, and explore survivor-identified barriers and facilitators to care. A comparison group of engaged survivors within the adult survivorship clinic will be used to analyze predictors of continued care adherence. This supplement extends the BCC’s mission to promote innovative translational cancer research, excellence in cancer education and training, and outstanding patient-centered cancer care, and to reduce the burden of cancer and cancer health disparities across Nebraska and beyond. Aim 1: Identify and characterize adult survivors of childhood cancer at BCC who were transitioned to primary care and are no longer engaged in survivorship care, using electronic health record (EHR) data. We will use electronic health records (EHR) to identify two groups: (a) survivors who transitioned from pediatric to adult survivorship care and are currently followed in the adult survivorship clinic (control group, n ≈ 60), and (b) survivors who transitioned from pediatric care but are not currently followed in the adult survivorship clinic (experimental group, n ≈ 90). We will compare demographic, clinical, and geographic characteristics, with particular attention to rural and underserved populations. Aim 2: Assess adherence to COG LTFU screening guidelines and unmet needs among disengaged survivors compared to those retained in adult survivorship care. We will administer structured surveys and conduct chart audits to evaluate screening adherence, unmet psychosocial needs, and care navigation gaps for survivors in both groups. Analyses will focus on differences in adherence to recommended surveillance and prevalence of unmet health and psychosocial needs. Aim 3: Explore barriers/facilitators to long-term survivorship care not currently followed in the adult survivorship clinic. Qualitative interviews will be conducted with a purposive sample of survivors from the experimental group (expected n = 20) to identify key barriers to ongoing engagement in survivorship care to inform future re-engagement efforts. Findings will inform the design of future re-engagement strategies.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $0 )
2026	2025	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	4215 EMILE ST	OMAHA	NE	68105	DOUGLAS	USA	Cancer Centers Support Grants	000	39	12/5/2025	SUPPLEMENT FOR EXPANSION	$0
														Subtotal = $0

Issue Date FY: 2025 ( Subtotal = $2,981,972 )
2025	2025	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	4215 EMILE ST	OMAHA	NE	68105	DOUGLAS	USA	Cancer Centers Support Grants	003	39	9/19/2025	SUPPLEMENT FOR EXPANSION	$96,312
2025	2025	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	4215 EMILE ST	OMAHA	NE	68105	DOUGLAS	USA	Cancer Centers Support Grants	000	39	8/15/2025	NON-COMPETING CONTINUATION	$2,593,786
2025	2025	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	4215 EMILE ST	OMAHA	NE	68105	DOUGLAS	USA	Cancer Centers Support Grants	002	39	9/9/2025	SUPPLEMENT FOR EXPANSION	$99,999
2025	2025	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	4215 EMILE ST	OMAHA	NE	68105	DOUGLAS	USA	Cancer Centers Support Grants	001	39	8/28/2025	SUPPLEMENT FOR EXPANSION	$191,875
														Subtotal = $2,981,972

Issue Date FY: 2024 ( Subtotal = $2,893,786 )
2024	2024	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	009	38	9/13/2024	SUPPLEMENT FOR EXPANSION	$200,000
2024	2024	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	007	38	9/11/2024	SUPPLEMENT FOR EXPANSION	$191,875
2024	2024	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	006	38	8/13/2024	NON-COMPETING CONTINUATION	$2,401,911
2024	2024	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	008	38	9/12/2024	SUPPLEMENT FOR EXPANSION	$100,000
2024	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	003	37	4/23/2024	SUPPLEMENT FOR EXPANSION	$0
2024	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	002	37	4/23/2024	SUPPLEMENT FOR EXPANSION	$0
2024	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	000	37	4/23/2024	NON-COMPETING CONTINUATION	$0
2024	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	004	37	4/23/2024	SUPPLEMENT FOR EXPANSION	$0
2024	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	010	37	9/25/2024	SUPPLEMENT FOR EXPANSION	$0
2024	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	001	37	4/23/2024	SUPPLEMENT FOR EXPANSION	$0
2024	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	005	37	4/23/2024	SUPPLEMENT FOR EXPANSION	$0
														Subtotal = $2,893,786

Issue Date FY: 2023 ( Subtotal = $3,517,901 )
2023	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	007	37	9/20/2023	SUPPLEMENT FOR EXPANSION	$200,000
2023	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	003	37	9/11/2023	NON-COMPETING CONTINUATION	$2,401,911
2023	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	005	37	9/13/2023	SUPPLEMENT FOR EXPANSION	$125,000
2023	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	008	37	9/26/2023	SUPPLEMENT FOR EXPANSION	$500,000
2023	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	006	37	9/19/2023	SUPPLEMENT FOR EXPANSION	$100,000
2023	2023	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	004	37	9/12/2023	SUPPLEMENT FOR EXPANSION	$191,875
2023	2021	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	002	35	4/11/2023	COMPETING CONTINUATION	-$45,608
2023	2020	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Detection and Diagnosis Research	000	33	10/11/2022	SUPPLEMENT FOR EXPANSION	-$885
2023	2020	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	001	34	4/11/2023	NON-COMPETING CONTINUATION	$45,608
														Subtotal = $3,517,901

Issue Date FY: 2022 ( Subtotal = $2,783,161 )
2022	2022	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	003	36	9/1/2022	NON-COMPETING CONTINUATION	$2,401,911
2022	2022	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Detection and Diagnosis Research	002	33	7/5/2022	SUPPLEMENT FOR EXPANSION	$381,250
2022	2021	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	001	35	1/12/2022	COMPETING CONTINUATION	$45,608
2022	2020	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	000	34	1/12/2022	NON-COMPETING CONTINUATION	-$45,608
														Subtotal = $2,783,161

Issue Date FY: 2021 ( Subtotal = $2,015,027 )
2021	2021	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	002	35	9/21/2021	COMPETING CONTINUATION	$2,395,392
2021	2020	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Detection and Diagnosis Research	001	33	4/7/2021	SUPPLEMENT FOR EXPANSION	$0
2021	2020	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Detection and Diagnosis Research	000	33	3/10/2021	SUPPLEMENT FOR EXPANSION	-$380,365
														Subtotal = $2,015,027

Issue Date FY: 2020 ( Subtotal = $2,488,250 )
2020	2020	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Detection and Diagnosis Research	000	33	6/30/2020	SUPPLEMENT FOR EXPANSION	$381,250
2020	2020	BOARD OF REGENTS OF THE UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	001	34	7/31/2020	NON-COMPETING CONTINUATION	$2,107,000
														Subtotal = $2,488,250

Issue Date FY: 2019 ( Subtotal = $2,107,000 )
2019	2019	UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	000	33	7/22/2019	NON-COMPETING CONTINUATION	$2,107,000
														Subtotal = $2,107,000

Issue Date FY: 2018 ( Subtotal = $2,075,035 )
2018	2018	UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	000	32	8/2/2018	NON-COMPETING CONTINUATION	$2,075,035
														Subtotal = $2,075,035

Issue Date FY: 2017 ( Subtotal = $2,107,000 )
2017	2017	UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	003	31	7/31/2017	NON-COMPETING CONTINUATION	$2,107,000
2017	2016	UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	002	30	1/31/2017	COMPETING CONTINUATION	$140,348
2017	2015	UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	001	29	1/31/2017	SUPPLEMENT FOR EXPANSION	-$89,185
2017	2015	UNIVERSITY OF NEBRASKA	987835 NEBRASKA MEDICAL CENTER	OMAHA	NE	68198	DOUGLAS	USA	Cancer Centers Support Grants	000	29	1/31/2017	NON-COMPETING CONTINUATION	-$51,163
														Subtotal = $2,107,000

Grand Total All Awards = $51,974,265

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Tracking and Engaging Disconnected Long-Term Survivors of Childhood Cancer to Improve Adherence to Evidence-Based Screening Guidelines

Award Number: P30CA036727

ORGANIZATION: NATIONAL CANCER INSTITUTE

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 09/05/1997

PERIOD OF PERFORMANCE END DATE: 08/31/2026

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