The Sudden Unexpected Infant Death (SUID) and Sudden Death in the Young (SDY) Case Registry - This five-year project is in response to the Centers for Disease Control and Prevention CDC-RFA-DP-23-0006 Sudden Unexpected Infant Death and Sudden Death in the Young Case Registry grant. The purpose of this project is to enhance the Arizona Child Fatality Review Program's (CFRP) capacity to prevent sudden unexpected infant deaths (SUIDs) and improve outcomes for Arizona's infants. The project aims to increase awareness and education around SUID prevention strategies, strengthen existing data collection and analysis processes, and implement evidence-based interventions to reduce SUID rates in Arizona further. Since 2006, the CFRP within the Arizona Department of Health (ADHS) has conducted a comprehensive review of every child less than 18 years of age who died in Arizona, in which data can be compared from year to year, and trends can be identified. Analyzing risk factors allows injuries to be anticipated and thus prevented when the appropriate protective measures are in place. Arizona utilizes the National Center for Fatality Review and Prevention database as our data repository. Arizona’s primary objectives for this five-year project are the following: -Identify and analyze 100% of SUID cases, resident and non-resident (case ascertainment and timeliness). -Conduct multidisciplinary child death reviews of all cases within 150 days of death. -Categorize each SUID case at the CFRP meetings according to the algorithm in the CDC’s SUID categorization guide. -Implement and ensure compliance of written policy, procedures, and algorithms for the CFRP. This includes policies on multidisciplinary team memberships, confidentiality, and member participation. -Enter all SUID case information within 30 days of case review. -Develop prevention recommendations within 30 days of case review. -Complete cleaning of all SUID cases within 30 days of completing data entry. -Disseminate information on project activities and SUID case results to CDC, stakeholders, community partners, and other state programs, including a wide distribution of descriptive reports with state aggregate data. -Analyzing SUIDI forms of all identified SUID cases. -Provide safe sleep education that includes information on addressing barriers to implementing best practices for families in need of a pack-n-play. -Distribute the Safe Sleep media campaign targeting at-risk populations. To meet these objectives, Arizona will: -Identify 100% of cases in Arizona. -Utilite access to key data sources for the Case Registry; including but not limited to vital statistics, hospital records, child protective services reports, death investigation reports and law enforcement reports. -Facilitate multi-disciplinary review meetings including diverse attendance and participation. -Fund .5 FTE of the CFRP Manager’s salary to oversee the CFRP and enter data into the National Fatality Review Case Reporting System. -The CFRP will conduct quality assurance on every case and provide training as needed to the local coordinators. -Analyze and report on Case Registry data annually with the CFRP Annual Report due November 15th. Other infographics, reports, and presentations will be developed continuously as needed. -Disseminate Case Registry data and findings to systems and agencies that serve birthing persons, infants and families to inform policy and practice changes that improve the health of these populations. -Arizona will also pursue component C as stated in the NOFO. -Fund .25 FTE of the Injury Prevention Program Manager’s salary to expand the Safe Sleep Task Force. This project has the potential to make a significant impact on SUID prevention in Arizona by enhancing the CFRP's efforts in this area. Through targeted outreach and education, improved data collection and analysis, and evidence-based interventions, the project aims to reduce SUID rates and improve outcomes for Arizona's infants.
