Friday, October 17, 2025 10/17/2025

MO-SEEDLING - Missouri Sickle Cell Data Collection Program

Award Number: NU58DD000037
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES
PERIOD OF PERFORMANCE START DATE: 09/30/2023
PERIOD OF PERFORMANCE END DATE: 09/29/2028

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MO-SEEDLING - Missouri Sickle Cell Data Collection Program - No statewide surveillance of SCD exists in MO making it difficult to know the prevalence of the disease, natural history and manifestations, and unmet healthcare and social needs of individuals living with SCD and their caregivers. The purpose of our application for Component B of the Sickle Cell Data Collection (SCDC) Program is to build a multidisciplinary SCDC team and infrastructure within MO to develop a surveillance system, adhering to standardized methods for implementing SCDC, that collects pertinent data to inform health care practice and policies. The development of a state-wide surveillance program for SCD will allow for gathering of unique data, analyses, and publication and dissemination of results that will inform decisions and policies that may lead to significant improvements in healthcare delivery and quality of life for the SCD community, both within our state and nationwide. Within the five year performance period of this award, we expect to achieve the following short-term outcomes in MO: 1)Increased standardization and modernization of methods for SCD surveillance; 2)Increased number of public health work force professionals who have an understanding of SCD surveillance; 3) Increased understanding of the incidence, prevalence, demographics, and healthcare utilization patterns of individuals with SCD; 4) Increased ability to describe the geographic distribution, social determinants of health, and health disparities related to SCD; 5) Increased availability and accessibility of SCD surveillance data to support policies that improve the lives of people with SCD; and 6) Increased availability and accessibility of educational materials to facilitate shared decision making about SCD-related health care.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2025 ( Subtotal = $375,000 )
2025	2025	Washington University, The	1 Brookings Dr	Saint Louis	MO	63130	SAINT LOUIS	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	3	9/17/2025	NON-COMPETING CONTINUATION	$375,000
2025	2024	Washington University, The	1 Brookings Dr	Saint Louis	MO	63130	SAINT LOUIS	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	3	9/17/2025	NON-COMPETING CONTINUATION	$0
2025	2023	Washington University, The	1 Brookings Dr	Saint Louis	MO	63130	SAINT LOUIS	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	3	9/17/2025	NON-COMPETING CONTINUATION	$0
														Subtotal = $375,000

Issue Date FY: 2024 ( Subtotal = $250,000 )
2024	2024	WASHINGTON UNIVERSITY, THE	ONE BROOKINGS DR	SAINT LOUIS	MO	63110	SAINT LOUIS CITY	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	2	9/5/2024	NON-COMPETING CONTINUATION	$250,000
2024	2023	WASHINGTON UNIVERSITY, THE	ONE BROOKINGS DR	SAINT LOUIS	MO	63110	SAINT LOUIS CITY	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	2	9/5/2024	NON-COMPETING CONTINUATION	$0
														Subtotal = $250,000

Issue Date FY: 2023 ( Subtotal = $250,000 )
2023	2023	WASHINGTON UNIVERSITY, THE	ONE BROOKINGS DR	SAINT LOUIS	MO	63130	SAINT LOUIS	USA	Blood Disorder Program: Prevention, Surveillance, and Research	00	1	9/14/2023	NEW	$250,000
														Subtotal = $250,000

Grand Total All Awards = $875,000

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MO-SEEDLING - Missouri Sickle Cell Data Collection Program

Award Number: NU58DD000037

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

PERIOD OF PERFORMANCE START DATE: 09/30/2023

PERIOD OF PERFORMANCE END DATE: 09/29/2028

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