Thursday, November 21, 2024 11/21/2024

Utah Registry of Autism and Developmental Disabilities: Enhancing Public Health Surveillance of Autism Spectrum Disorder in Utah through the Autism and Developmental Disabilities Monitoring Network

Award Number: NU53DD000009
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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PROJECT ABSTRACT SUMMARY Utah’s measured autism spectrum disorder (ASD) prevalence rates have consistently fallen among the highest in the ADDM Network. The underlying reason for this trend is unclear, necessitating on-going ASD surveillance to address this public health concern. The Utah Registry of Autism and Developmental Disabilities (URADD) participated in the ADDM Network to identify 8-year-old children with ASD during surveillance years(SY)2002, 2008, 2010, and 2012, and in the Early ADDM Network to identify 4-year-old children with ASD in SY2010 and SY2012. URADD is proposing to return to the ADDM Network in SY2018 and SY2020 to conduct ASD surveillance in a three county Utah surveillance area for 4 and 8-year old children(Component A) and 16-year-old children (Component B). Participation in the ADDM Network enhances URADD’s capacity for detailed data collection to improve our understanding of ASD prevalence and disparities, predict future service needs, evaluate responses to public health efforts targeting early ASD identification,and examine variation in transition planning experienced by adolescents with ASD. URADD will focus on accomplishing multiple outcomes during SY2018 and SY2020 including 1) Improved understanding of ASD, including trends and disparities in ASD prevalence over time and by demographic factors, 2) Strengthened ASD surveillance among 4-year-old children, 3) Improved understanding of differences in ASD characteristics by age, 4) Stronger relationships between recipient and partners/data sources, 5) Increased dissemination of ADDM data 6) Improved reliability and efficiency of ADDM surveillance, and 7) Improved policies and plans that address ASD research agendas and services for children with ASD. To accomplish these outcomes, UT-ADDM will employ ADDM/MADDSP methodologies and case definitions for all surveillance-related activities for SY2018 and SY2020. URADD is the agency tasked under the authority and direction of the Utah Department of Health to measure an d monitor the prevalence and associated features of ASD for public health purposes. Data sharing between health and education sources with URADD is mandated by the Utah legislature under public health reporting rule R398-10-1. UT-ADDM will conduct two-site specific analysis related to ADDM outcomes. First, a cohort approach will be applied to administrative data to estimate ASD prevalence, cumulative incidence and incidence rates there by elucidating our understanding of trends in ASD prevalence across age and birth cohorts. Second,differences in characteristics between males and females with ASD at different ages will be addressed, which will provide insight into factors driving disparities in ASD prevalence between males and females. Efforts to maintain and strengthen our collaborative relationships include 1) annual stakeholder meetings, 2) participation in ADDM calls and workgroups, 3) taking leadership roles in local health and community groups, and 4) providing trainings/presentations for community stakeholders.Finally, UT-ADDM will implement a rigorous evaluation and performance measurement plan that will ensure program implementation and improvement, demonstrate UT-ADDM’s achievement of program outputs and outcomes, provide input on potential changes to ADDM Network methodology, and assess the effectiveness of outreach strategies.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = $0 )
2024	2022	UNIVERSITY OF UTAH	201 PRESIDENTS CIR	SALT LAKE CITY	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	03	4	10/23/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2021	UNIVERSITY OF UTAH	201 PRESIDENTS CIR	SALT LAKE CITY	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	03	4	10/23/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2020	UNIVERSITY OF UTAH	201 PRESIDENTS CIR	SALT LAKE CITY	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	03	4	10/23/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2019	UNIVERSITY OF UTAH	201 PRESIDENTS CIR	SALT LAKE CITY	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	03	4	10/23/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $0

Issue Date FY: 2023 ( Subtotal = $0 )
2023	2022	University Of Utah, The	201 PRESIDENTS CIR	Salt Lake City	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	02	4	1/18/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2021	University Of Utah, The	201 PRESIDENTS CIR	Salt Lake City	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	02	4	1/18/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $0

Issue Date FY: 2022 ( Subtotal = $570,129 )
2022	2022	University Of Utah, The	201 PRESIDENTS CIR	Salt Lake City	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	01	4	5/18/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2022	UNIVERSITY OF UTAH, THE	201 PRESIDENTS CIR	SALT LAKE CITY	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	00	4	11/19/2021	NON-COMPETING CONTINUATION	$570,129
2022	2021	University Of Utah, The	201 PRESIDENTS CIR	Salt Lake City	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	01	4	5/18/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2021	UNIVERSITY OF UTAH, THE	201 PRESIDENTS CIR	SALT LAKE CITY	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	00	4	11/19/2021	NON-COMPETING CONTINUATION	$0
														Subtotal = $570,129

Issue Date FY: 2021 ( Subtotal = $570,129 )
2021	2021	University Of Utah, The	201 Presidents Cir	Salt Lake City	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	01	3	5/10/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2021	University Of Utah, The	201 PRESIDENTS CIR	Salt Lake City	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	00	3	12/4/2020	NON-COMPETING CONTINUATION	$570,129
														Subtotal = $570,129

Issue Date FY: 2020 ( Subtotal = $681,505 )
2020	2020	UNIVERSITY OF UTAH, THE	201 S PRESIDENT CIRCLE RM 408	SALT LAKE CITY	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	00	2	11/27/2019	NON-COMPETING CONTINUATION	$570,129
2020	2020	University Of Utah, The	201 PRESIDENTS CIR	Salt Lake City	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	01	2	7/22/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$111,376
														Subtotal = $681,505

Issue Date FY: 2019 ( Subtotal = $570,129 )
2019	2019	UNIVERSITY OF UTAH, THE	201 S PRESIDENT CIRCLE RM 408	SALT LAKE CITY	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	01	1	2/20/2019	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2019	2019	UNIVERSITY OF UTAH, THE	201 S President Circle Rm 408	Salt Lake City	UT	84112	SALT LAKE	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	00	1	12/7/2018	NEW	$570,129
														Subtotal = $570,129

Grand Total All Awards = $2,391,892

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Utah Registry of Autism and Developmental Disabilities: Enhancing Public Health Surveillance of Autism Spectrum Disorder in Utah through the Autism and Developmental Disabilities Monitoring Network

Award Number: NU53DD000009

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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