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University of Minnesota, Minnesota Autism Spectrum Disorder Prevalence Project

Award Number: NU53DD000007
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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Autism spectrum disorder (ASD) remains one of the fastest growing developmental disabilities in the United States (Centers for Disease Control and Prevention [CDC, 2018]), with approximately one in 59 children is identified with ASD (Baio et al., 2018). The concern over increased ASD prevalence, combined with growing public awareness, has highlighted the need for a better understanding of the prevalence, characteristics, and age of identification of children with ASD in U.S. communities. The University of Minnesota (MN) has a strong track record of studying ASD prevalence, specifically addressing concerns that Somali children have a higher prevalence and severity of ASD than other groups (Hewitt et al., 2016; Esler et al., 2017). In 2015, MN joined the CDC’s ADDM Network and conducted a multi-source (education + clinic source), records-based public health surveillance project to monitor the prevalence of ASD and ID in 8-year-old children within Hennepin and Ramsey counties. The proposed MNADDM prevalence project will add Anoka to these counties, which will result in a wider variety of geographic areas and larger numbers of children from diverse cultural and socioeconomic backgrounds to validate and expand upon the trends identified in Study Years 2014-2016. The purpose of this application is to estimate prevalence of ASD in a defined geographic region containing a culturally diverse population. We intend to employ validated, systematic surveillance methods developed by the ADDM Network to: 1) calculate population-based estimates of the prevalence and characteristics of 4 and 8-year-olds with ASD; 2) identify disparities in prevalence, characteristics, and timing of diagnosis across age, demographic groups (including Somali and Hmong), and geographic areas; and 3) continue and expand community engagement activities to disseminate information on findings to increase the use of ADDM data to inform policy, research, and resource decisions. To identify population--based estimates for 4 and 8-year-olds, this project will review both education and clinic source records. Collaboration with the Minnesota Department of Health, Minnesota Department of Education, school systems, and clinic sources are confirmed (see letters of commitment). The Minnesota Department of Health Commissioner has committed to delegating sentinel surveillance authority to the University of Minnesota team to gain access to clinic source records (replicating the procedure that was conducted in Study Years 2014 and 2016). We have an eager and supportive community advisory committee that will guide outreach and dissemination efforts as well as assist us with formative review to ensure our work plan and evaluation plans are effectively implemented. The University of Minnesota’s Research and Training Center on Community Living offers substantial infrastructure and support to enable this project to be completed in a timely and successful manner. Project staff has vast experience in ASD and other neurodevelopmental disabilities, in conducting projects to estimate population--based prevalence, and in specific community outreach and dissemination activities regarding minority and immigrant populations.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = -$2,738 )
2024	2022	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	02	4	12/19/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	-$2,738
2024	2021	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	02	4	12/19/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2020	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	02	4	12/19/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2019	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	02	4	12/19/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = -$2,738

Issue Date FY: 2023 ( Subtotal = $0 )
2023	2022	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE # 224	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	01	4	12/19/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2021	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE # 224	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	01	4	12/19/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $0

Issue Date FY: 2022 ( Subtotal = $394,784 )
2022	2022	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE # 224	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	00	4	11/19/2021	NON-COMPETING CONTINUATION	$394,784
2022	2021	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE # 224	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	00	4	11/19/2021	NON-COMPETING CONTINUATION	$0
														Subtotal = $394,784

Issue Date FY: 2021 ( Subtotal = $394,784 )
2021	2021	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE # 224	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	00	3	12/5/2020	NON-COMPETING CONTINUATION	$394,784
2021	2021	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE # 224	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	01	3	4/23/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $394,784

Issue Date FY: 2020 ( Subtotal = $468,992 )
2020	2020	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE # 224	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	02	2	7/22/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$74,208
2020	2020	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 Oak St SE # 224	Minneapolis	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	00	2	11/27/2019	NON-COMPETING CONTINUATION	$394,784
2020	2020	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 Oak St SE # 224	Minneapolis	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	03	2	9/29/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2020	2020	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 Oak St Se # 224	Minneapolis	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	01	2	3/2/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $468,992

Issue Date FY: 2019 ( Subtotal = $394,784 )
2019	2019	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 OAK ST SE # 224	MINNEAPOLIS	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	01	1	2/20/2019	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2019	2019	REGENTS OF THE UNIVERSITY OF MINNESOTA	200 Oak St Se # 224	Minneapolis	MN	55455	HENNEPIN	USA	Autism and Other Developmental Disabilities, Surveillance, Research, and Prevention	00	1	12/7/2018	NEW	$394,784
														Subtotal = $394,784

Grand Total All Awards = $1,650,606

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University of Minnesota, Minnesota Autism Spectrum Disorder Prevalence Project

Award Number: NU53DD000007

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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