The Arkansas Autism and Developmental Disabilities Monitoring Program (AR ADDM) is a multiple-source, population-based surveillance program aimed to determine and monitor the number of children in Arkansas’ population with an autism spectrum disorder.
The purpose of this proposal is to continue development of AR ADDM’s population-based, multi-source surveillance for autism spectrum disorder (ASD) and comorbid intellectual disability (ID) among 8-year-old children, adding surveillance for 4-year-olds and 16-year-olds and applying the ADDM/MADDSP methodology and case definition for ASD to the 2018 and 2020 surveillance years. Employing surveillance data, AR ADDM aims to improve understanding of ASD, including trends and disparities over time and by demographic factors; add collection of ADDM data for 4-year-olds to strengthen ASD surveillance; improve understanding of differences in ASD characteristics by age through comparisons of children aged 4 years, 8 years, and 16 years; strengthen AR ADDM’s relationships with stakeholder partners and data sources; increase dissemination of ADDM data; and improve reliability and efficiency of ADDM surveillance. AR ADDM is applying for funding for both Component A (4-year-old and 8-year-old ASD Surveillance) and Component B (16-year-old ASD Surveillance)
AR ADDM activities proposed are aimed to generate progress toward the following ADDM Network short-term outcomes
Outcome 1 (OC1) Improved understanding of ASD, including trends and disparities in ASD prevalence over time and by demographic factors.
Outcome 2 (OC2) Strengthened ASD surveillance among 4-year-old children through collection of ADDM data for 4-year-olds in all sites.
Outcome 3 (OC3) Improved understanding of differences in ASD characteristics by age through comparisons of children aged 4 years, 8 years, and 16 years.
Outcome 4 (OC4) Stronger relationships between recipients (AR ADDM) and partners/data sources through community events and data sharing.
Outcome 5 (OC5) Increased dissemination of (AR) ADDM data through presentations, publications, online communications, and community events.
Outcome 6 (OC6) Improved reliability and efficiency of (AR) ADDM surveillance through adherence to standardized data collection methods, assessment of performance measures, ongoing training, and sharing of best practices among sites.
A long-term outcome for Component A and B that will also be addressed over the period of performance is
Outcome 11 (OC11) Improved policies and plans that address ASD research agendas and services for children with ASD.