In Kentucky, Universal Newborn Hearing Screening was implemented in 2001 and has been mandatory since 2007. For the past 13 years, birthing hospitals in KY have achieved a screening rate of 96% or better prior to discharge. Individual demographic and newborn hearing screening information is accurately reported for the vast majority of Kentucky?s 51,400 (average) births and follow-up audiologic diagnostic information is reported timely. KY EHDI continues to strive to meet the Early Intervention (EI) enrollment benchmark of 85%, although difficult, due to Part C?s strict adherence to FERPA and IDEA confidentiality requirements. KY EI also does not consider mild bilateral or any unilateral hearing loss as eligible conditions. Loss-to-Follow-up and Loss-to-Documentation (LTF/LTD) remain issues in ensuring that all KY babies have adequate access to language. LTF/LTD occurs between screening and diagnostic evaluations and between diagnosis and referral to EI. The purpose of this application is to enhance and maintain Kentucky?s EHDI-IS to improve services to those children and families in Kentucky who have referred on the newborn hearing screen or that have been diagnosed with hearing loss. By ensuring an optimized data collection system, more children will have improved surveillance and monitoring allowing for earlier diagnoses and intervention and fewer children being lost to follow-up. Outcomes to be achieved through this funding include:Short-term Outcomes?Meet the requirements of the CDC EHDI Functional Standards?Improved collaboration between audiologists and jurisdictional EHDI program?Increased knowledge and skills among audiologists in the jurisdiction about reporting hearing results?Improved collaboration between early intervention programs and jurisdictional EHDI program ?Increased knowledge among program staff and stakeholders of current data issues, including loss to follow-up and loss to documentation?Increased understanding by jurisdict
ional EHDI program and stakeholders of strengths and weakness of the systemIntermediate Outcomes?More audiologists in the jurisdiction report high quality diagnostic hearing results ?Improved the accuracy, completeness and timeliness of follow-up and intervention enrollment data?Increased targeted dissemination of information among internal and external stakeholders?Increased the timely submission of standardized patient-level datasets to CDC (excluding PII)?Increased standardization and comparability of EHDI follow-up data by CDC at national levelLong-term Outcomes?Use of timely patient-level data among EHDI programs for tracking and to inform decision making ?Increased the number of infants who receive a diagnosis no later than 3 months of age ?Increased enrollment in Early Intervention services no later than 6 months of age, for infants who are D/HH.