The purpose of the Early Hearing Detection and Intervention (EHDI) Program project is to improve timely documentation, reporting, and analysis of diagnostic and intervention data. This will be achieved by optimizing the existing EHDI-IS and enhancing the data collection and reporting, as well as increasing the technical assistance related to data reporting from providers to ensure infants receive timely diagnostic and intervention services.Of the 221,508 newborns born in Florida during calendar year 2018, 8,563 newborns did not pass their initial hearing screenings and required additional testing to determine their hearing status. The Florida Newborn Screening Program/Early Hearing Detection and Intervention (EHDI) Program, follows up with the families of the 8,563 infants who do not pass screenings to encourage additional testing and to obtain updated results for screenings and diagnostic evaluations. 259 were identified with hearing loss after not passing the newborn hearing screening. Of those 259 infants, 131 were identified timely, by three months of age. 176 of the 288 infants were referred for early intervention services timely, which is by six months of age. Failure to refer by the age of six months occurs because many infants are not diagnosed with a permanent hearing loss until after six months of age. The other reason is delays with reporting the confirmed hearing loss to the EHDI office by the diagnosing audiologist so that the early intervention referral can be made. Lastly, 169 of the 259 infants were enrolled in Part C early intervention services. The most frequent reason for not enrolling in the early intervention program is a lack of response to letters and calls to the parent regarding initiating enrollment. The second most common reason is that the parents decline services. (All figures are as reported in the 2018 Centers for Disease Control and Prevention EHDI Hearing Screening & Follow-up Survey). Proposed optimization
activities?Enhance the EHDI-IS capacity to meet the SHALL requirements of the EHDI-IS Functional Standards.?Enhance the EHDI-IS capacity to support preparation of a patient-level data set to the Centers for Disease Control and Prevention (CDC).?Develop and implement data linkages to enable data sharing between jurisdictional EHDI-IS and other public health systems to improve timeliness and completeness of follow-up diagnostic and intervention information. ?Engage with stakeholders for follow-up tracking and reporting by:oObtaining the number of audiology diagnostic facilities within the state;oMaintaining and improving connection and collaboration with audiologists;oMaintaining and improving connection and collaboration with intervention programs;oMaintaining and improving connection and collaboration with other stakeholders; andoStrengthening audiologist reporting protocols.?Assess the quality of data collected in the EHDI-IS in accordance with the Functional Standards 5.1. and 5.5.?Assess program progress toward stated outcomes using data collected in the EHDI-IS.?Collaborate with the CDC to conduct a detailed analysis on patient-level data.?Strategic communication and dissemination of findings of data analysis and evaluation to key stakeholders and partners. ?Data submission to the CDC by submitting the HSFS and patient-level data set.