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Preparing Patient-Caregiver Dyads with Parkinson's Disease for End-of-Life Decision Making

Award Number: K23NR019099
ORGANIZATION: NATIONAL INSTITUTE OF NURSING RESEARCH
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: TRAINING/TRAINEESHIP
PERIOD OF PERFORMANCE START DATE: 07/26/2021
PERIOD OF PERFORMANCE END DATE: 06/30/2025

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Preparing Patient-Caregiver Dyads with Parkinson's Disease for End-of-Life Decision Making - Project Summary/Abstract The K23 application describes the background and experience of Dr. Jiayun Xu, PhD, RN, and her research and training plan to become an independent nurse researcher in the field of dyadic advance care planning interventions among persons with serious illness and their families (e.g. Parkinson’s disease). The overall goal of the K23 is to gain experience in designing and testing clinical trials, learn about different models for advance care planning (ACP) facilitation, and gain skills to conduct advanced dyadic and longitudinal analysis of data. A comprehensive training plan has been developed with an interdisciplinary mentorship team with the following training goals: (1) develop competency in the design and delivery of dyadic ACP communication interventions among persons with Parkinson’s disease and their caregivers; (2) acquire expertise in ACP communication models that can be applied to persons with Parkinson’s disease and their caregivers; and (3) develop skills in analyzing complex dyadic data using longitudinal and multilevel statistics. The training plan includes intensive one-on- one mentorship, coursework/workshops, formal training on clinical trials and advance care planning facilitation, and independent studies on advance care planning and longitudinal statistics with mentors. The purpose of the K23 project, is to develop, refine, and test the feasibility of a novel dyadic ACP intervention tailored to the unique needs of people with Parkinson’s disease and their caregivers. The specific aims are: (1) to identify the dyadic advance care planning needs for Parkinson’s disease, (2) develop and refine dyadic Parkinson’s disease-specific ACP materials, and (3) pilot test the dyadic Parkinson’s disease-specific ACP materials with an established intervention – PREPARE – for feasibility and acceptability. Results will lead to a R01 application for translating the intervention from pilot testing to a fully powered randomized control trial.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = -$184,920 )
2026	2023	PURDUE UNIVERSITY	2550 NORTHWESTERN AVE # 1100	WEST LAFAYETTE	IN	47906	TIPPECANOE	USA	Nursing Research	000	3	1/9/2026	NON-COMPETING CONTINUATION	-$184,920
														Subtotal = -$184,920

Issue Date FY: 2023 ( Subtotal = $165,023 )
2023	2023	PURDUE UNIVERSITY	2550 NORTHWESTERN AVE STE 1900	WEST LAFAYETTE	IN	47906	TIPPECANOE	USA	Nursing Research	000	3	6/13/2023	NON-COMPETING CONTINUATION	$165,023
														Subtotal = $165,023

Issue Date FY: 2022 ( Subtotal = $165,024 )
2022	2022	PURDUE UNIVERSITY	2550 NORTHWESTERN AVE STE 1900	WEST LAFAYETTE	IN	47906	TIPPECANOE	USA	Nursing Research	001	2	6/21/2022	NON-COMPETING CONTINUATION	$165,024
2022	2021	PURDUE UNIVERSITY	155 S GRANT ST	WEST LAFAYETTE	IN	47907	TIPPECANOE	USA	Nursing Research	000	1	10/25/2021	NEW	$0
														Subtotal = $165,024

Issue Date FY: 2021 ( Subtotal = $165,024 )
2021	2021	PURDUE UNIVERSITY	155 S GRANT ST	WEST LAFAYETTE	IN	47907	TIPPECANOE	USA	Nursing Research	000	1	7/26/2021	NEW	$165,024
														Subtotal = $165,024

Grand Total All Awards = $310,151

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Preparing Patient-Caregiver Dyads with Parkinson's Disease for End-of-Life Decision Making

Award Number: K23NR019099

ORGANIZATION: NATIONAL INSTITUTE OF NURSING RESEARCH

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: TRAINING/TRAINEESHIP

PERIOD OF PERFORMANCE START DATE: 07/26/2021

PERIOD OF PERFORMANCE END DATE: 06/30/2025

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