Thursday, July 3, 2025 7/3/2025

Hemophilia Treatment Centers (SPRANS)

Award Number: H3024050
ORGANIZATION: MATERNAL AND CHILD HEALTH BUREAU
OPDIV: HRSA
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES
PERIOD OF PERFORMANCE START DATE: 06/01/2012
PERIOD OF PERFORMANCE END DATE: 09/30/2022

Group Awards By:

View Award Description

Hemophilia Treatment Centers (SPRANS) - Project Abstract Project Title: Regional Hemophilia Network of the Mid-Atlantic Region Applicant: Children’s Hospital of Philadelphia Address: 3400 Civic Center Blvd., Philadelphia, PA 19104-5127 Project Director: Regina B. Butler, R.N.- B.C. Contact Phone Numbers: 215-590-2198; Fax: 267-426-2821 Email Address: butler@chop.edu Website: http://www.chop.edu/centers-programs/mid-atlantic-region-iii-core-center-federally-funded-hemophilia-treatment-centers Grant program funds requested: $500,000 per year or $2,500,000 over the 5-year grant Funding Priority: Requesting Need to be addressed: Hemophilia is a rare, complex, X-linked genetic disorder requiring expert, integrated, family-centered care. This includes expert analysis for appropriate diagnosis and management and is best provided by a multi-disciplinary comprehensive team. Hemophilia and other inherited bleeding disorders are lifelong chronic conditions that impact all aspects of a patient’s life and have significant impact on the patient’s family. Population groups to be served and proposed services: Patients with inherited bleeding disorders, including hemophilia and von Willebrand disease, in the Mid-Atlantic Region (MAR) and their families. The overall project goal is to improve the health and well-being of individuals with hemophilia and other bleeding and clotting disorders through strengthening the Regional Hemophilia Treatment Centers (HTCs) in the MAR. Goals and Objectives: To enhance the established infrastructure and oversight of the HTCs with strengthened HTC teams to; conduct Quality Improvement (QI) Projects; collect data for HP2030 joint measure; improve health equity and inclusion; enhance collaboration with the National Hemophilia Program Coordinating Center (NHPCC), federal partners, consumers, and other stakeholders; and identify measures and collect data to best evaluate project outcomes. Methodology: The MAR Core Center will achieve the goals and objectives, with participation and support of the 16 MAR HTCs; technical assistance and careful oversight and frequent monitoring of HTCs; completion of the national Quality Improvement project to ensure transition plans for patients; participation in defining and utilization of data collection tools; increased consumer input in HTC and regional planning; documentation/dissemination of policies; and increased collaboration with the NHPCC, federal partners, and consumer groups. Coordination: The Regional Core Center will collaborate with the MAR HTCs, local and national consumer groups, the NHPCC, HRSA Project Officers, and other stakeholders to accomplish project goals. The MAR core center and HTCs will maintain active roles on NHPCC projects to achieve national goals. Coordination will include a collaborative approach to project outcome evaluation and tool development, identification, and implementation of national QI Project(s), resource sharing among MAR HTCs and with other regions, and participation in leadership and committee meetings. Evaluation: The Core Center will continue to closely evaluate HTCs regularly. The MAR will participate in identifying national priorities, establishing tools to evaluate related progress, will monitor QI project participation and outcomes, and collection of data for Healthy People 2030 measures, HRSA reports, and NHPCC projects. 340 B Program oversight will continue to increase to assure HRSA requirements are met.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = $0 )
2024	2022	CHILDREN'S HOSPITAL OF PHILADELPHIA, THE	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	04	11	11/22/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $0

Issue Date FY: 2023 ( Subtotal = -$338,769 )
2023	2022	CHILDREN'S HOSPITAL OF PHILADELPHIA, THE	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	03	11	1/17/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	-$328,810
2023	2022	CHILDREN'S HOSPITAL OF PHILADELPHIA, THE	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	02	11	1/5/2023	EXTENSION WITH OR WITHOUT FUNDS	$0
2023	2021	CHILDREN'S HOSPITAL OF PHILADELPHIA, THE	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	01	10	3/10/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	-$9,959
														Subtotal = -$338,769

Issue Date FY: 2022 ( Subtotal = $500,000 )
2022	2022	CHILDREN'S HOSPITAL OF PHILADELPHIA, THE	3401 CIVIC CENTER BLVD	PHILADELPHIA	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	01	11	7/18/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2022	Children's Hospital of Philadelphia, The	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	00	11	4/14/2022	COMPETING CONTINUATION	$500,000
														Subtotal = $500,000

Issue Date FY: 2021 ( Subtotal = $500,000 )
2021	2021	Children'S Hospital Of Philadelphia, The	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	00	10	4/26/2021	NON-COMPETING CONTINUATION	$500,000
2021	2020	Children'S Hospital Of Philadelphia, The	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	04	9	3/29/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2020	Children'S Hospital Of Philadelphia, The	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	02	9	1/4/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2020	Children'S Hospital Of Philadelphia, The	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	03	9	3/5/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2020	Children'S Hospital Of Philadelphia, The	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	01	9	11/22/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $500,000

Issue Date FY: 2020 ( Subtotal = $499,264 )
2020	2020	Children'S Hospital Of Philadelphia, The	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	00	9	3/30/2020	NON-COMPETING CONTINUATION	$500,000
2020	2016	Children'S Hospital Of Philadelphia, The	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	04	5	3/19/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	-$736
														Subtotal = $499,264

Issue Date FY: 2019 ( Subtotal = $500,000 )
2019	2019	Children'S Hospital Of Philadelphia, The	3401 Civic Center Blvd	Philadelphia	PA	19104	PHILADELPHIA	USA	Maternal and Child Health Federal Consolidated Programs	00	8	4/16/2019	NON-COMPETING CONTINUATION	$500,000
														Subtotal = $500,000

Grand Total All Awards = $1,660,495

Top

All Categories

About

Search

Reports

Data Submission

Award Information

Hemophilia Treatment Centers (SPRANS)

Award Number: H3024050

ORGANIZATION: MATERNAL AND CHILD HEALTH BUREAU

OPDIV: HRSA

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

PERIOD OF PERFORMANCE START DATE: 06/01/2012

PERIOD OF PERFORMANCE END DATE: 09/30/2022

Federal Websites

Department of Health & Human Services

HHS Operating Divisions

HHS Staff Divisions

Download A Document Viewer