Thursday, November 21, 2024
11/21/2024
The SEMTBIS was designated as a Traumatic Brain Injury Model System (TBIMS) in 1987. The primary aims were to provide a comprehensive continuum of care and specialized services for people with traumatic brain injury (TBI), conduct innovative research, and participate in establishing a national database. This state-of-the-art program studies and provides services to people with TBI from injury onset through long-term community integration. In 1993, SEMTBIS was awarded a grant to serve as the TBIMS National Data Center and served in this capacity through 1999. Currently there are 858 active participants in the SEMTBIS, with 5,664 follow-up collection points, some as far as 30 years post injury. Considering our urban population, collecting follow-up data is very challenging. Yet, we have been highly successful at doing so. The SEMTBIS proposal addresses the NIDILRR priority of Health and Function, which relates to objectives defined in the New Freedom Initiative and NIDILRR's Long-Range Plan. The projects also address the essential priority of participation and community living. Consistent with NIDILRR’s focus on participatory action, the projects were developed with consumer input from current SEMTBIS participants and other members of the Detroit community. Participatory action also is a central component of project implementation, evaluation, and dissemination. Major areas of focus are as follows: The site specific study, a randomized controlled trial (RCT) of a group intervention to improve resilience and social support in family members of those with TBI, addresses the well- established problem of burden and social/emotional distress associated with caring for persons with TBI, and the potential adverse effects of family emotional distress on the outcomes of the person with the brain injury. Few injuries have the same lifelong impact as TBI, and it is widely acknowledged that family play a key role in a person’s recovery after TBI. Yet, there is a need for research on family members who have coped well, demonstrating strength and resilience in their adaptation to their loved one’s injury. This proposal will measure baseline resilience and explore associated coping traits, and includes an intervention that attempts to enhance family resilience and social support via a group intervention. The proposed module project is a collaborative study that examines the role of menopause in women with TBI. Women with TBI have been woefully understudied and the proposed module will provide researchers an opportunity to determine if the experience of menopause is different in women with brain injury vs. those without. Given that this will be a multicenter module project, it is anticipated that women from various regions around the country with diverse socioeconomic, racial, and educational backgrounds will provide a robust measurement of this experience. Evaluation of SEMTBIS projects and operations will employ multifaceted quantifiable and objective procedures, supplemented by input from the Advisory Board. Project staff will meet monthly to evaluate and revise activities as needed. Collaboration with other NIDILRR grantees as well as the Brain Injury Association of Michigan will increase research activities, optimize output, and minimize redundancy. Dissemination of our findings will continue to be a high priority, achieved through our websites, publications, presentations, and collaboration with the Model Systems Knowledge Translation Center.
HHS’ Tracking Accountability in Government Grants System (TAGGS) website provides access to detailed descriptions of grants, loans, aggregated direct payments and other types of financial assistance awarded by the HHS Operating Divisions (OPDIVs) and the Office of the Secretary Staff Divisions (STAFFDIVs).
