Saturday, September 7, 2024
9/7/2024
Project Title: National Coordinating Center on Transition Consortium Applicant Organization Name: Association of Maternal & Child Health Programs (AMCHP) Address: 1825 K St., NW, Ste. 250, Washington, DC 20006 Project Director Name: Paige (Bussanich) Falion Contact Phone Number: 202-266-3042 | Fax: (202) 478-5120 E-Mail Address: pbussanich@amchp.org Web Site Address: http://www.amchp.org Total request: $3,675,000 (over 5 years of the project) The Association of Maternal and Child Health Programs (AMCHP) and its Consortium partners (Altarum, American Academy of Pediatrics, Child Trends, and Family Voices) propose the establishment of the National Coordinating Center on Transition (NCCT) program under the Transition for Youth with Autism and/or Epilepsy initiative. This program aims to develop comprehensive frameworks and resources at national, state, and local levels to facilitate successful transitions from child to adult-serving systems for youth with autism and/or epilepsy who have complex health and social needs (YAES). By August 2029, the Consortium plans to increase the percentage of youth successfully transitioning to adult-serving systems by 50% and enhance awareness and knowledge among stakeholders regarding sustainable and scalable transition strategies. The proposed Collective Impact (CI) model, with AMCHP serving as the backbone organization, emphasizes equity and collaboration to achieve system-level change. Through partnerships with national agencies, federally funded programs, and persons with lived experience (PWLE), the NCCT will provide leadership, technical assistance, and training to improve transition outcomes. This partnership aims to improve transition outcomes for youth with autism and/or epilepsy (YAES) and their families/caregivers through comprehensive strategies. The objectives of the NCCT encompass a multifaceted approach to improving transition outcomes. Objective 1 involves assembling a diverse National Trans ition Advisory Council (NTAC) to provide guidance and support, ensuring diverse representation and compensating members for their expertise. Additionally, the Consortium will establish a YAES Transition Faculty to co-design activities informed by youth with lived experience.to guide the project, ensuring inclusive representation and co-design of activities. Objective 2 utilizes Consortium expertise to engage stakeholders and offer technical support to HRSA-24-042 Demonstration Project recipients. Objective 3 entails continual assessment of transition barriers and opportunities through various methods such as landscape analysis and focus groups. Objective 4 aims to develop a unified definition of "successful transition" by collaborating with stakeholders and emphasizing family input. Additionally, Objective 5 focuses on enhancing the NCCT as a resource hub through website development and dissemination activities. Objective 6 centers on providing national-level training and technical assistance (TA), including tracking TA requests and engaging individuals with lived experience. Objective 7 aims to offer individualized TA to support DP recipients in implementation, sustainability, and scalability efforts. Lastly, Objective 8 facilitates peer-to-peer learning opportunities for DP recipients through hosting learning collaboratives and maintaining communication networks. These objectives collectively aim to drive policy/practice changes and improve transition outcomes for youth with disabilities and special healthcare needs. Overall, AMCHP's extensive experience, expertise, and commitment to equity position them as a capable leader in implementing and leading the NCCT program, with a focus on improving outcomes for youth and their families/caregivers.
HHS’ Tracking Accountability in Government Grants System (TAGGS) website provides access to detailed descriptions of grants, loans, aggregated direct payments and other types of financial assistance awarded by the HHS Operating Divisions (OPDIVs) and the Office of the Secretary Staff Divisions (STAFFDIVs).
