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Resources to Assist Investigations in Primary Immunodeficiency Diseases (U24)

Award Number: U24AI086037
ORGANIZATION: NATIONAL INSTITUTE OF ALLERGY & INFECTIOUS DISEASES
OPDIV: NIH
AWARD CLASS: COOPERATIVE AGREEMENT
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 04/01/2010
PERIOD OF PERFORMANCE END DATE: 03/31/2022

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Resources to Assist Investigations in Primary Immunodeficiency Diseases (U24) - DESCRIPTION (provided by applicant): The field of Primary Immune Deficiency Diseases PIDD continues to grow rapidly, with recognition of over 200 different disease-associated genes. To keep pace with these discoveries, the NIH has supported a number of mechanisms to accelerate and expand PIDD research, funding individual grants, contracts, and cooperative agreements. The NIAID has recognized that a number of additional resources are required to advance this work, including data collection, physician education, and access to rare resources and first proposed an RFA for this work in 2003. To answer this need, a group of experienced PIDD investigators formed the U. S. Immunodeficiency Network (USIDNET), in collaboration with the Immune Deficiency Foundation (IDF). This group was awarded the first contract, (2003-2010) and subsequently, as a competitive continuation the USIDNET was awarded a cooperative agreement for this work, receiving funds for 2010-2015. The present application is for the continuation of this work, under RFA-AI-13-054, "Resources to Assist Investigations in Primary Immunodeficiency Diseases". To continue and accelerate this momentum, the USIDNET investigators propose to carry forward this initiative, with innovative plans to extend and accelerate this work. The goals of USIDNET are to maintain, improve and extend the needed PIDD resources, including (1) Extend the scope, enrollment and utilization of the secure, web-based, consented USIDNET Registry of individuals with all forms of PIDD, to collect longitudinal data, develop additional PIDD-specific forms, support observational studies, stimulate research collaborations, engage the patient community directly and further define patient outcomes using Quality of Life indicators; (2) Maintain and expand a repository of cells and DNA to aid in the research of PIDD and find ways to make accessible other rare materials and (3) Provide intensive training and educational opportunities for dissemination of information about these diseases, and encourage collaborative PIDD research at all levels.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = -$71,198 )
2024	2019	IMMUNE DEFICIENCY FOUNDATION INC	7550 TEAGUE RD STE 220	HANOVER	MD	21076	HOWARD	USA	Allergy and Infectious Diseases Research	000	10	2/25/2024	NON-COMPETING CONTINUATION	-$71,198
														Subtotal = -$71,198

Issue Date FY: 2021 ( Subtotal = $0 )
2021	2019	IMMUNE DEFICIENCY FOUNDATION INC.	110 WEST ROAD, SUITE 300	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	000	10	4/14/2021	NON-COMPETING CONTINUATION	$0
2021	2019	IMMUNE DEFICIENCY FOUNDATION INC.	110 WEST ROAD, SUITE 300	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	001	10	6/8/2021	NON-COMPETING CONTINUATION	$0
														Subtotal = $0

Issue Date FY: 2019 ( Subtotal = $697,747 )
2019	2019	IMMUNE DEFICIENCY FOUNDATION INC.	110 WEST ROAD, SUITE 300	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	000	10	2/28/2019	NON-COMPETING CONTINUATION	$697,747
														Subtotal = $697,747

Issue Date FY: 2018 ( Subtotal = $697,747 )
2018	2018	IMMUNE DEFICIENCY FOUNDATION INC.	110 WEST ROAD, SUITE 300	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	000	9	2/21/2018	NON-COMPETING CONTINUATION	$697,747
														Subtotal = $697,747

Issue Date FY: 2017 ( Subtotal = $697,747 )
2017	2017	IMMUNE DEFICIENCY FOUNDATION INC.	110 WEST ROAD, SUITE 300	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	000	8	3/27/2017	NON-COMPETING CONTINUATION	$697,747
														Subtotal = $697,747

Issue Date FY: 2016 ( Subtotal = $698,247 )
2016	2016	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	000	7	3/8/2016	NON-COMPETING CONTINUATION	$698,247
														Subtotal = $698,247

Issue Date FY: 2015 ( Subtotal = $699,315 )
2015	2015	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	001	6	7/17/2015	COMPETING CONTINUATION	$99,315
2015	2015	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	000	6	2/12/2015	COMPETING CONTINUATION	$600,000
														Subtotal = $699,315

Issue Date FY: 2014 ( Subtotal = $592,657 )
2014	2014	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	000	5	3/20/2014	NON-COMPETING CONTINUATION	$592,657
														Subtotal = $592,657

Issue Date FY: 2013 ( Subtotal = $557,098 )
2013	2013	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	000	4	3/27/2013	NON-COMPETING CONTINUATION	$533,391
2013	2013	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	001	4	6/5/2013	NON-COMPETING CONTINUATION	$23,707
														Subtotal = $557,098

Issue Date FY: 2012 ( Subtotal = $647,657 )
2012	2012	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	003	3	8/14/2012	NON-COMPETING CONTINUATION	$0
2012	2012	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	001	3	4/6/2012	NON-COMPETING CONTINUATION	$1,881
2012	2012	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	000	3	3/26/2012	NON-COMPETING CONTINUATION	$590,776
2012	2012	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	002	3	8/13/2012	NON-COMPETING CONTINUATION	$55,000
														Subtotal = $647,657

Issue Date FY: 2011 ( Subtotal = $594,017 )
2011	2011	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	001	2	6/21/2011	NON-COMPETING CONTINUATION	$41,284
2011	2011	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	000	2	3/17/2011	NON-COMPETING CONTINUATION	$552,733
														Subtotal = $594,017

Issue Date FY: 2010 ( Subtotal = $600,000 )
2010	2010	IMMUNE DEFIENCY FOUNDATION	40 WEST CHESAPEAKE AVENUE	TOWSON	MD	21204	BALTIMORE	USA	Allergy and Infectious Diseases Research	000	1	3/31/2010	NEW	$600,000
														Subtotal = $600,000

Grand Total All Awards = $6,411,034

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Resources to Assist Investigations in Primary Immunodeficiency Diseases (U24)

Award Number: U24AI086037

ORGANIZATION: NATIONAL INSTITUTE OF ALLERGY & INFECTIOUS DISEASES

OPDIV: NIH

AWARD CLASS: COOPERATIVE AGREEMENT

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 04/01/2010

PERIOD OF PERFORMANCE END DATE: 03/31/2022

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