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Mid-Atlantic Pediatric Long COVID Network:Implementing patient-centered and multi-disciplinary practices to improve pediatric long COVID

Award Number: U18HS029920
ORGANIZATION: AGENCY FOR HEALTH CARE RESEARCH AND QUALITY
OPDIV: AHRQ
AWARD CLASS: COOPERATIVE AGREEMENT
AWARD ACTIVITY TYPE: KDA (KNOWLEDGE/DEVELOPMENT/APPLICATION)
PERIOD OF PERFORMANCE START DATE: 09/30/2023
PERIOD OF PERFORMANCE END DATE: 09/29/2028

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Mid-Atlantic Pediatric Long COVID Network:Implementing patient-centered and multi-disciplinary practices to improve pediatric long COVID - PROJECT SUMMARY Long COVID can affect many aspects of a child’s physical and mental health. Between 5 and 25% of children with SARS-CoV-2 infection go on to develop long COVID. Persistent health disparities and socioeconomic factors have put certain vulnerable populations at higher risk of infection, morbidity, and mortality from SARS- CoV-2 infection. In pediatrics, children with physical, intellectual, or developmental disabilities (IDDs), children from resource-limited areas (e.g., rural), and children that are uninsured or underinsured are particularly vulnerable populations that have limited access to specialized pediatric clinics for children with COVID-19 sequelae. Even with the successes of the Pediatric Post-COVID-19 Rehabilitation Clinic at the Kennedy Krieger Institute to garner international recognition for its integrated and person-centered multidisciplinary clinic model and substantial research, awareness, and advocacy efforts of the clinical team, there remain critical gaps in long COVID care for children. These gaps include limited integrative healthcare treatments, resources for navigating schooling, and access to timely long COVID care in the community and medical home. There are two arms to this proposal to address these gaps in multi-faceted and independent ways. Arm 1 will involve using an innovative integrative health model of care to expand and strengthen the services of the KKI Pediatric Post-COVID-19 Rehabilitation Clinic. This model can help support children with long lasting persistent or fluctuating symptoms, acknowledging the critical roles schools serve as an important partner in the cultural context of health and in the recovery process of pediatric patients. Arm 2 will involve the development of a novel Pediatric Long COVID Telementoring ECHO (Extension for Community Healthcare Outcomes) Project. The highly experienced clinical team will create provider education on long COVID in typically developing children (TDC) and children with IDD to educate and mentor multidisciplinary community providers through an 8-10 course series that will be adapted annually. In partnership with the Agency for Healthcare Research and Quality, this proposal will achieve the following program objectives: (1) expand and strengthen the current clinic to utilize an innovative integrative healthcare model, (2) provide services to more children with long COVID, (3) expand services offered, (4) strengthen care coordination, (5) implement and share best practices for long COVID management, (6) support the primary care community in long COVID education and management through the Pediatric Long COVID ECHO project, (7) evaluate project success through mixed methods evaluations, and (8) disseminate project findings through community partners. In the end, with this proposal a network of community providers across Maryland and the Mid-Atlantic region will be established that can treat pediatric long COVID early and effectively, providing greater access to care in vulnerable pediatric populations.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $0 )
2026	2025	HUGO W. MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER, INC.	707 N BROADWAY	BALTIMORE	MD	21205	BALTIMORE CITY	USA	Research on Healthcare Costs, Quality and Outcomes	000	3	4/8/2026	NON-COMPETING CONTINUATION	$0
														Subtotal = $0

Issue Date FY: 2025 ( Subtotal = $886,288 )
2025	2025	HUGO W. MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER, INC.	707 N BROADWAY	BALTIMORE	MD	21205	BALTIMORE CITY	USA	Research on Healthcare Costs, Quality and Outcomes	000	3	9/11/2025	NON-COMPETING CONTINUATION	$886,288
														Subtotal = $886,288

Issue Date FY: 2024 ( Subtotal = $914,256 )
2024	2024	HUGO W. MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER, INC.	707 N BROADWAY	BALTIMORE	MD	21205	BALTIMORE CITY	USA	Research on Healthcare Costs, Quality and Outcomes	002	2	8/16/2024	NON-COMPETING CONTINUATION	$914,256
2024	2023	HUGO W. MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER, INC.	707 N BROADWAY	BALTIMORE	MD	21205	BALTIMORE CITY	USA	Research on Healthcare Costs, Quality and Outcomes	001	1	6/3/2024	NEW	$0
2024	2023	HUGO W. MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER, INC.	707 N BROADWAY	BALTIMORE	MD	21205	BALTIMORE CITY	USA	Research on Healthcare Costs, Quality and Outcomes	000	1	10/17/2023	NEW	$0
														Subtotal = $914,256

Issue Date FY: 2023 ( Subtotal = $943,814 )
2023	2023	HUGO W. MOSER RESEARCH INSTITUTE AT KENNEDY KRIEGER, INC.	707 N BROADWAY	BALTIMORE	MD	21205	BALTIMORE CITY	USA	Research on Healthcare Costs, Quality and Outcomes	000	1	9/20/2023	NEW	$943,814
														Subtotal = $943,814

Grand Total All Awards = $2,744,358

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Mid-Atlantic Pediatric Long COVID Network:Implementing patient-centered and multi-disciplinary practices to improve pediatric long COVID

Award Number: U18HS029920

ORGANIZATION: AGENCY FOR HEALTH CARE RESEARCH AND QUALITY

OPDIV: AHRQ

AWARD CLASS: COOPERATIVE AGREEMENT

AWARD ACTIVITY TYPE: KDA (KNOWLEDGE/DEVELOPMENT/APPLICATION)

PERIOD OF PERFORMANCE START DATE: 09/30/2023

PERIOD OF PERFORMANCE END DATE: 09/29/2028

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