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Improving Patient Reported Outcome Data for Research through Seamless Integration of the PROMIS Toolkit into EHR Workflows

Award Number: U01TR001806
ORGANIZATION: NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES
OPDIV: NIH
AWARD CLASS: COOPERATIVE AGREEMENT
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 09/15/2016
PERIOD OF PERFORMANCE END DATE: 06/30/2021

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Improving Patient Reported Outcome Data for Research through Seamless Integration of the PROMIS Toolkit into EHR Workflows - Patient-reported outcomes (PROs) reflect the experience of health and healthcare as reported directly by the patient. There is increasing evidence that capturing PROs will be an essential component of quality measurement, quality improvement, and patient engagement in care and research. The Patient-Reported Outcomes Measurement Information System (PROMIS) toolset is a PRO survey system that utilizes computer adaptive testing to provide precise measurements with a minimum number of questions, often shortening conventional PRO surveys by 10-fold or more. Unfortunately, previous attempts to integrate PROMIS into Electronic Health Records (EHR) have not integrated optimally into EHR workflows. Working with the PROMIS software team, NUCATS has developed a seamless integration of the PROMIS toolset into our local Epic EHR installation. This experience has convinced us that tight workflow integration brings many benefits and greatly facilitates incorporation of PROs into both quality and clinical research projects. The response to our presentations of this work has also demonstrated that there is a need for similar integration at many CTSA sites. This project represents a collaboration of nine CTSA sites: NU, University of Chicago, University of Illinois at Chicago, University of Alabama at Birmingham, University of Kentucky, University of Florida, University of Utah, Harvard Catalyst CTS, and Southern California CTSI. These sites utilize a variety of different EHR platforms. The team includes the developers of the PROMIS toolset software, experts in EHR integration, and experts at SMART and FHIR. The goal of this project is to develop and evaluate a suite of software tools that will allow all CTSA sites to integrate PROMIS tools directly into their EHRs. To achieve this, we will develop software to support tight integration into the two most common academic medical center EHRs--Epic and Cerner. We will develop a generalized integration of the PROMIS toolset, utilizing the SMART-on-FHIR standard, that can be implemented in multiple EHR platforms. Finally, we will implement and evaluate these software solutions across a number of diverse CTSA sites both within and outside of the project team CTSA sites.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2022 ( Subtotal = -$47,275 )
2022	2019	NORTHWESTERN UNIVERSITY	633 CLARK ST	EVANSTON	IL	60208	COOK	USA	National Center for Advancing Translational Sciences	000	4	11/27/2021	NON-COMPETING CONTINUATION	-$47,275
														Subtotal = -$47,275

Issue Date FY: 2020 ( Subtotal = $0 )
2020	2019	NORTHWESTERN UNIVERSITY	633 CLARK ST	EVANSTON	IL	60208	COOK	USA	National Center for Advancing Translational Sciences	001	4	9/3/2020	NON-COMPETING CONTINUATION	$0
2020	2019	NORTHWESTERN UNIVERSITY	633 CLARK ST	EVANSTON	IL	60208	COOK	USA	National Center for Advancing Translational Sciences	000	4	11/18/2019	NON-COMPETING CONTINUATION	$0
														Subtotal = $0

Issue Date FY: 2019 ( Subtotal = $1,550,530 )
2019	2019	NORTHWESTERN UNIVERSITY	633 CLARK ST	EVANSTON	IL	60208	COOK	USA	National Center for Advancing Translational Sciences	001	4	7/5/2019	NON-COMPETING CONTINUATION	$1,550,530
2019	2018	NORTHWESTERN UNIVERSITY	633 CLARK ST	EVANSTON	IL	60208	COOK	USA	National Center for Advancing Translational Sciences	000	3	6/3/2019	NON-COMPETING CONTINUATION	$0
														Subtotal = $1,550,530

Issue Date FY: 2018 ( Subtotal = $1,517,814 )
2018	2018	NORTHWESTERN UNIVERSITY	633 CLARK ST	EVANSTON	IL	60208	COOK	USA	National Center for Advancing Translational Sciences	000	3	6/18/2018	NON-COMPETING CONTINUATION	$1,517,814
														Subtotal = $1,517,814

Issue Date FY: 2017 ( Subtotal = $1,554,801 )
2017	2017	NORTHWESTERN UNIVERSITY	633 CLARK ST	EVANSTON	IL	60208	COOK	USA	National Center for Advancing Translational Sciences	001	2	8/31/2017	NON-COMPETING CONTINUATION	$155,480
2017	2017	NORTHWESTERN UNIVERSITY	633 CLARK ST	EVANSTON	IL	60208	COOK	USA	National Center for Advancing Translational Sciences	000	2	7/12/2017	NON-COMPETING CONTINUATION	$1,399,321
														Subtotal = $1,554,801

Issue Date FY: 2016 ( Subtotal = $1,669,069 )
2016	2016	NORTHWESTERN UNIVERSITY	633 CLARK STREET	EVANSTON	IL	60208	COOK	USA	National Center for Advancing Translational Sciences	000	1	9/9/2016	NEW	$1,669,069
														Subtotal = $1,669,069

Grand Total All Awards = $6,244,939

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Improving Patient Reported Outcome Data for Research through Seamless Integration of the PROMIS Toolkit into EHR Workflows

Award Number: U01TR001806

ORGANIZATION: NATIONAL CENTER FOR ADVANCING TRANSLATIONAL SCIENCES

OPDIV: NIH

AWARD CLASS: COOPERATIVE AGREEMENT

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 09/15/2016

PERIOD OF PERFORMANCE END DATE: 06/30/2021

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