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Thursday, July 3, 2025 7/3/2025

Characterizing the Natural History of Fragile X Syndrome to Inform the Development of Intervention,Outcome Measures

Award Number: U01DD001298
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 09/01/2021
PERIOD OF PERFORMANCE END DATE: 08/31/2026

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Characterizing the Natural History of Fragile X Syndrome to Inform the Development of Intervention,Outcome Measures


	Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

	Issue Date FY: 2025 ( Subtotal = $800,000 )
	2025	2025	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/27/2025	NON-COMPETING CONTINUATION	$800,000
	2025	2024	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/27/2025	NON-COMPETING CONTINUATION	$0
	2025	2023	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/27/2025	NON-COMPETING CONTINUATION	$0
	2025	2022	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/27/2025	NON-COMPETING CONTINUATION	$0
	2025	2021	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/27/2025	NON-COMPETING CONTINUATION	$0
															Subtotal = $800,000

	Issue Date FY: 2024 ( Subtotal = $800,000 )
	2024	2024	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	6/25/2024	NON-COMPETING CONTINUATION	$800,000
	2024	2023	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	1/19/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
	2024	2023	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	6/25/2024	NON-COMPETING CONTINUATION	$0
	2024	2022	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	6/25/2024	NON-COMPETING CONTINUATION	$0
	2024	2022	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	1/19/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
	2024	2021	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	6/25/2024	NON-COMPETING CONTINUATION	$0
	2024	2021	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	1/19/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
															Subtotal = $800,000

	Issue Date FY: 2023 ( Subtotal = $800,000 )
	2023	2023	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	6/9/2023	NON-COMPETING CONTINUATION	$800,000
	2023	2022	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	6/9/2023	NON-COMPETING CONTINUATION	$0
	2023	2021	RUSH UNIVERSITY MEDICAL CENTER	1653 W CONGRESS PKWY	CHICAGO	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	6/9/2023	NON-COMPETING CONTINUATION	$0
															Subtotal = $800,000

	Issue Date FY: 2022 ( Subtotal = $800,000 )
	2022	2022	Rush University Medical Center	1620 W Harrison St	Chicago	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	6/3/2022	NON-COMPETING CONTINUATION	$800,000
	2022	2021	Rush University Medical Center	1620 W Harrison St	Chicago	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	6/3/2022	NON-COMPETING CONTINUATION	$0
															Subtotal = $800,000

	Issue Date FY: 2021 ( Subtotal = $800,000 )
	2021	2021	Rush University Medical Center	1653 W Congress Prkwy	Chicago	IL	60612	COOK	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	1	6/25/2021	NEW	$800,000
															Subtotal = $800,000

	Grand Total All Awards = $4,000,000

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