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PREVENTION OF THE COMPLICATIONS OF BLEEDING THROUGH HTCS

Award Number: U01DD000197
ORGANIZATION: CENTERS FOR DISEASE CONTROL AND PREVENTION
OPDIV: CDC
AWARD CLASS: COOPERATIVE AGREEMENT
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 09/30/2006
PERIOD OF PERFORMANCE END DATE: 09/29/2011

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PREVENTION OF THE COMPLICATIONS OF BLEEDING THROUGH HTCS - DESCRIPTION (provided by applicant): The objective of this application is to prevent complications of hemophilia by proactive implementation of prevention programs in the states of Wisconsin, Illinois, Minnesota, North Dakota, and South Dakota. The Great Lakes Hemophilia Foundation, the Regional Grantee for this five-state region, will enhance the capacity of regional centers as a public health prevention network by: 1) developing and coordinating a plan for multi-disciplinary, comprehensive prevention services for persons with bleeding disorders; (2) developing programs to identify underserved populations including minorities and women; (3) facilitating access to appropriate training and technical assistance; (4) promoting referral and access to educational and support services; (5) promoting and facilitating the exchange of information and collaboration among health care providers; (6) developing appropriate management and evaluation systems to track treatment center achievement of program plans, goals and objectives, and assess compliance with federal regulation; and (7) participating in surveillance for complications of bleeding disorders including data collection for the Universal Data Collection (UDC) and clinical research utilizing that data. The specific aims of this application include the following: 1) To expand the cohort through continued recruitment of individuals with genetic bleeding disorders; 2) To complete a transition of the database from paper to electronic and then from email to web-based; 3) To design prevention messages and strategies to share research findings; and 4) To utilize exising/expanded UDC data to address clinical issues such as these proposed by V-West: a. Joint disease progression in hemophilic patients with established hemophilic arthropathy: Evaluation of risk factors and the effect of secondary prophylaxis. b. Hemorrhagic and vascular complications of von Willebrand disease. c. An evaluation of the efficacy of a transition protocol in preparing adolescents with a bleeding disorder for self-sufficiency. It is anticipated that the proposed research will help to accelerate the adoption of healthy behaviors and that lessons leaned from this research will have application for broader populations.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2011 ( Subtotal = $0 )
2011	2010	GREAT LAKES HEMOPHILIA FOUNDATION, INC	POST OFFICE BOX 13127	WAUWATOSA	WI	53213	MILWAUKEE	USA	Centers for Disease Control and Prevention Investigations and Technical Assistance	000	5	1/19/2011	NON-COMPETING CONTINUATION	$0
														Subtotal = $0

Issue Date FY: 2010 ( Subtotal = $580,517 )
2010	2010	GREAT LAKES HEMOPHILIA FOUNDATION, INC	POST OFFICE BOX 13127	WAUWATOSA	WI	53213	MILWAUKEE	USA	Centers for Disease Control and Prevention Investigations and Technical Assistance	000	5	9/16/2010	NON-COMPETING CONTINUATION	$580,517
														Subtotal = $580,517

Issue Date FY: 2009 ( Subtotal = $678,967 )
2009	2009	GREAT LAKES HEMOPHILIA FOUNDATION, INC	POST OFFICE BOX 13127	WAUWATOSA	WI	53213	MILWAUKEE	USA	Centers for Disease Control and Prevention Investigations and Technical Assistance	000	4	9/17/2009	NON-COMPETING CONTINUATION	$678,967
														Subtotal = $678,967

Issue Date FY: 2008 ( Subtotal = $678,967 )
2008	2008	GREAT LAKES HEMOPHILIA FOUNDATION, INC	POST OFFICE BOX 13127	WAUWATOSA	WI	53213	MILWAUKEE	USA	Centers for Disease Control and Prevention Investigations and Technical Assistance	000	3	8/22/2008	NON-COMPETING CONTINUATION	$678,967
														Subtotal = $678,967

Issue Date FY: 2007 ( Subtotal = $722,306 )
2007	2007	GREAT LAKES HEMOPHILIA FOUNDATION, INC	POST OFFICE BOX 13127	WAUWATOSA	WI	53213	MILWAUKEE	USA	Centers for Disease Control and Prevention Investigations and Technical Assistance	000	2	8/16/2007	NON-COMPETING CONTINUATION	$722,306
														Subtotal = $722,306

Issue Date FY: 2006 ( Subtotal = $722,306 )
2006	2006	GREAT LAKES HEMOPHILIA FOUNDATION, INC	POST OFFICE BOX 13127	WAUWATOSA	WI	53213	MILWAUKEE	USA	Centers for Disease Control and Prevention Investigations and Technical Assistance	000	1	8/17/2006	NEW	$722,306
														Subtotal = $722,306

Grand Total All Awards = $3,383,063

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PREVENTION OF THE COMPLICATIONS OF BLEEDING THROUGH HTCS

Award Number: U01DD000197

ORGANIZATION: CENTERS FOR DISEASE CONTROL AND PREVENTION

OPDIV: CDC

AWARD CLASS: COOPERATIVE AGREEMENT

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 09/30/2006

PERIOD OF PERFORMANCE END DATE: 09/29/2011

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