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Advance Care Planning in the Dementias: Culturally-Tailored Caregiver Education for African Americans

Award Number: R44AG065095
ORGANIZATION: NATIONAL INSTITUTE ON AGING
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 08/01/2019
PERIOD OF PERFORMANCE END DATE: 06/30/2023

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Advance Care Planning in the Dementias: Culturally-Tailored Caregiver Education for African Americans - African Americans face significantly greater risk of Alzheimer’s Disease and other dementias than white Americans but receive disproportionately less attention to dementia screening and support, resulting in a silent epidemic in this underserved population. Advance Care Treatment Plan (ACT-Plan) is a culturally-tailored caregiver education program for African American dementia caregivers with decisional responsibility that was previously evaluated in an R01 study. The program comprises four 1-hour group sessions of instruction with interactive exercises and homework. In a randomized controlled trial (R01AG043485), outcomes included significant improvements in caregiver knowledge and self-efficacy in advance care treatment decision-making for loved ones with dementia. While found effective, the above intervention was delivered in person by content experts, which is neither practical nor cost-effective for wide dissemination of this much-needed form of support. Thus alternative means of delivery are desirable. In African American communities many faith-based organizations maintain active health ministries, making them a natural resource with personnel that provide valuable service to members of their congregations and other community members. This FastTrack project will produce and evaluate a self-directed multimedia version of the ACT-Plan program, to be called “ACT-Plan(m)”, that can be facilitated by local, non-expert volunteers from health ministries of faith-based organizations, and others. If successful, this will enable wide dissemination of this form of caregiver education in African American communities. Phase I Aims: 1. Produce a prototype module of the ACT-Plan(m) program. 2. Conduct usability testing with three test groups using the prototype module. 3. Assess usability data and caregiver outcomes. Phase II Aims: 1. Produce all modules of the ACT-Plan(m) program. 2. Produce website for streaming and downloads of program materials. 3. Assess impact of ACT-Plan(m) on caregiver knowledge and self-efficacy in a randomized controlled trial. We hypothesize that caregivers receiving ACT-Plan(m) will attain significant improvements in knowledge and self-efficacy outcomes comparable to those of the original ACT-Plan program. Commercial product. ACT-Plan(m) will be a standardized, evidence-based caregiver education program for use by faith-based and secular health advocacy organizations serving the African American community, as well as private individuals. The program will be accessible online with video streaming and downloadable print materials, and in hard copy format (DVD, flash drive, and printed materials) for low-resource settings, portability, lending libraries, and users without web access. This new resource will empower community-based health advocacy organizations to better address dementia care in underserved African American communities. It will be the first evidence-based, culturally-tailored, self-directed multimedia dementia caregiver education program to aid African Americans in managing advance care planning and end of life decision-making. Public health benefits include reduced suffering and costs of end of life care for families and society.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = $0 )
2024	2021	COLLINGE AND ASSOCIATES, INC.	3480 KINCAID ST	EUGENE	OR	97405	LANE	USA	Aging Research	001	3	1/16/2024	NON-COMPETING CONTINUATION	$0
2024	2019	COLLINGE AND ASSOCIATES, INC.	3480 KINCAID ST	EUGENE	OR	97405	LANE	USA	Aging Research	000	1	1/16/2024	NEW	$0
														Subtotal = $0

Issue Date FY: 2021 ( Subtotal = $661,330 )
2021	2021	COLLINGE AND ASSOCIATES, INC.	3480 KINCAID ST	EUGENE	OR	97405	LANE	USA	Aging Research	000	3	7/19/2021	NON-COMPETING CONTINUATION	$661,330
														Subtotal = $661,330

Issue Date FY: 2020 ( Subtotal = $901,538 )
2020	2020	COLLINGE AND ASSOCIATES, INC.	3480 KINCAID ST	EUGENE	OR	97405	LANE	USA	Aging Research	002	2	6/24/2020	EXTENSION WITH OR WITHOUT FUNDS	$901,538
2020	2019	COLLINGE AND ASSOCIATES, INC.	3480 KINCAID ST	EUGENE	OR	97405	LANE	USA	Aging Research	000	1	11/19/2019	NEW	$0
2020	2019	COLLINGE AND ASSOCIATES, INC.	3480 KINCAID ST	EUGENE	OR	97405	LANE	USA	Aging Research	001	1	6/11/2020	NEW	$0
														Subtotal = $901,538

Issue Date FY: 2019 ( Subtotal = $331,097 )
2019	2019	COLLINGE AND ASSOCIATES, INC.	3480 KINCAID ST	EUGENE	OR	97405	LANE	USA	Aging Research	000	1	7/16/2019	NEW	$331,097
														Subtotal = $331,097

Grand Total All Awards = $1,893,965

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Advance Care Planning in the Dementias: Culturally-Tailored Caregiver Education for African Americans

Award Number: R44AG065095

ORGANIZATION: NATIONAL INSTITUTE ON AGING

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 08/01/2019

PERIOD OF PERFORMANCE END DATE: 06/30/2023

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