Wednesday, April 2, 2025
4/2/2025
Autism Secondary Data Analysis Program - Project Title: The economic and healthcare impacts of COVID-19 on adolescents with autism Funding Opportunity Number: HRSA-23-069 Organization Name: Florida State University College of Social Work Project Director: Kristy Anderson Address: 296 Champions Way, C3403 Contact Phone Number: 850.644.9599 E-Mail Address: Kanderson12@fsu.edu Organization Website: https://csw.fsu.edu/ Grant Funds Requested: $119,763 Problem. The COVID-19 pandemic has placed massive social and economic burdens on the lives of children with autism spectrum disorder (ASD) and their families. Minoritized and low-income children and their families bear a disproportionately higher brunt of the pandemic and face a greater risk of economic hardship, poor mental health, and limited access to healthcare. The roots of these inequities are shaped by social determinants of health (SDoH) and understanding and acting on those determinants can play a pivotal role in advancing health equity for children and teenagers with autism Goal(s) and objectives. Our central goal is to assess the economic and healthcare impacts of COVID-19 among youth and young adults with ASD and to consider context-specific effects based on race/ethnicity and income. Aligning with Healthy People 2030’s vision, the study aims to: 1) Identify the prevalence, determinants, and context of economic insecurity during COVID-19 among ASD households; 2) Examine changes in economic insecurity and access to healthcare among youth with autism before and during COVID-19, and context-specific effects (e.g., race and ethnicity, household income); and 3) Identify economic profiles associated with healthcare access among youth with autism during COVID-19. Proposed data sets and target population. The study draws from the Families and Child Wellbeing Study, the National Emergency Department Sample, and the National Survey of Children’s Health. Our sample comprises of youth and young adults with autism, 3-25 years. To address Aim 1, we will produce population-level estimates of economic insecurity among ASD households and compare them to those of children with other disabilities. To address Aim 2, we will calculate levels of material hardship among ASD households during the pandemic (2020-2022) and compare them to pre-COVID levels (2017-2019). We will also use national claims data to determine whether the number of emergency department visits increased during COVID for people with autism, ages 3-25 years, and if reasons for visits differed over time. Our final set of analyses will use latent class analysis to create profiles of economic insecurity among ASD households and their relationship to healthcare access. Products. We will publish four peer-reviewed manuscripts from this research, each corresponding to the set of analyses described above. Together, these manuscripts will provide critical insights into the social impacts of COVID-19 among families of youth and young adults with ASD. We will also present our findings at three research conferences and employ several strategies for disseminating knowledge products to non-scientific audiences. Evaluation. Goal-specific progress monitoring activities will each occur monthly to ensure targets are being met. At each team meeting, we will monitor and review publication production status. Key terms: Content terms: Access to Health Care, Health Care Utilization, Health Disparities, Health Care Costs, Emergency Care, Mental Health & Well-Being, Autism Spectrum Disorder, Special Health Care Needs, Social Determinants of Health Targeted populations: African American, Asian/Pacific Islander, Hispanic/Latino, Indigenous/Native American/Alaskan Native, Other Persons of Color, Persons Otherwise Adversely Affected by Persistent Poverty or Inequality, Persons with Disabilities or Special Health Care Needs Age ranges: Middle Childhood (6–11 years), Adolescence (12–18 years), Young Adulthood (19–25 years)
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