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LINC-AD: Leveraging an Interdisciplinary Consortium to Improve Care and Outcomes for Persons Living with Alzheimer's and Dementia

Award Number: R24AG065185
ORGANIZATION: NATIONAL INSTITUTE ON AGING
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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Among the recommendations of the 2017 National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers is the development of methods for measuring person-centered outcomes. This goal aligns with that of the Alzheimer's Association, which recently released their 2018 Dementia Care Practice Recommendations, organized around a nine-domain model of dementia care. While developing the recommendations, critical limitations were noted in the measures and care tools available to guide practice and evaluate outcomes. Specifically, existing measures do not adequately reflect the voices of persons with dementia and their caregivers; focus on biomedical rather than psychosocial issues; are deficit- as opposed to strengths-based; insufficiently consider the system in which care is provided; and overlook the importance of the context (e.g., stage of disease) in which they are to be used. These goals for better measurement constitute a paradigmatic shift in the field that is long overdue. Even with better measures, there is also a dearth of tools to help providers know whether they are fully following evidence-based practices. Absent such tools, quality improvement is hampered. In response, we propose to create an international research network, entitled Leveraging an Interdisciplinary Consortium to Improve Care and Outcomes for Persons Living with Alzheimer's and Dementia (LINC-AD). The core of the consortium will be the current Dementia Care Practice Recommendations working group members (the Research Advisors), and a second group composed of persons with dementia, caregivers, and professional providers (the Care Advisors). The LINC-AD consortium will undertake a series of high impact activities designed to usher in the next phase of psychosocial research in care for persons with Alzheimer's disease and related disorders. Using the nine domain model as a framework, LINC-AD will broaden scientific interest and involvement in psychosocial dementia research while completing the following aims: (1) critique existing outcome measures and care tools and identify gaps; (2) promote the development of new outcome measures and care tools where needed; and (3) facilitate the dissemination, adoption, implementation, and sustained use of existing and new outcome measures and care tools. Collaboration with the Alzheimer's Association brings unique and substantial resources to this proposal. The Association will work with our Research and Care Advisors, host webinars and meetings, issue calls for papers, and fund a minimum of twelve seed grants responsive to the project aims. They will also host a permanent and sustainable online repository for the resulting LINC-AD recommended measures and tools, and add a psychosocial arm to their existing state-of-the-art online shareable database (Global Alzheimer's Association Interactive Network; GAAIN). The results of the LINC-AD will facilitate a larger and more connected scientific community to conduct novel analyses and facilitate interdisciplinary efforts to better understand and address the needs of persons living with dementia and their care providers.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2023 ( Subtotal = $249,792 )
2023	2023	ALZHEIMERS DISEASE & RELATED DISORDERS ASSOCIATION INC	225 N MICHIGAN AVE	CHICAGO	IL	60601	COOK	USA	Aging Research	000	5	5/1/2023	NON-COMPETING CONTINUATION	$249,792
														Subtotal = $249,792

Issue Date FY: 2022 ( Subtotal = $292,605 )
2022	2022	ALZHEIMER'S DISEASE AND RELATED DISORDERS ASSOCIATION, INC.	225 NORTH MICHIGAN AVENUE 17TH FL	CHICAGO	IL	60601	COOK	USA	Aging Research	000	4	6/6/2022	NON-COMPETING CONTINUATION	$292,605
														Subtotal = $292,605

Issue Date FY: 2021 ( Subtotal = $224,078 )
2021	2021	ALZHEIMER'S DISEASE AND RELATED DISORDERS ASSOCIATION, INC.	225 NORTH MICHIGAN AVENUE 17TH FL	CHICAGO	IL	60601	COOK	USA	Aging Research	000	3	4/23/2021	NON-COMPETING CONTINUATION	$224,078
														Subtotal = $224,078

Issue Date FY: 2020 ( Subtotal = $288,877 )
2020	2020	ALZHEIMER'S DISEASE AND RELATED DISORDERS ASSOCIATION, INC.	225 NORTH MICHIGAN AVENUE 17TH FL	CHICAGO	IL	60601	COOK	USA	Aging Research	000	2	5/14/2020	NON-COMPETING CONTINUATION	$288,877
														Subtotal = $288,877

Issue Date FY: 2019 ( Subtotal = $287,791 )
2019	2019	ALZHEIMER'S DISEASE AND RELATED DISORDERS ASSOCIATION, INC.	225 NORTH MICHIGAN AVENUE 17TH FL	CHICAGO	IL	60601	COOK	USA	Aging Research	000	1	9/18/2019	NEW	$287,791
														Subtotal = $287,791

Grand Total All Awards = $1,343,143

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LINC-AD: Leveraging an Interdisciplinary Consortium to Improve Care and Outcomes for Persons Living with Alzheimer's and Dementia

Award Number: R24AG065185

ORGANIZATION: NATIONAL INSTITUTE ON AGING

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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