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Using Qualitative Methods to Capture Experiences of Breast Cancer Patients and Characterize Knowledge Types and Levels: The First Step in Informing Patient Knowledge Sharing

Award Number: R03CA283228
ORGANIZATION: NATIONAL CANCER INSTITUTE
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 04/01/2024
PERIOD OF PERFORMANCE END DATE: 03/31/2027

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Using Qualitative Methods to Capture Experiences of Breast Cancer Patients and Characterize Knowledge Types and Levels: The First Step in Informing Patient Knowledge Sharing - PROJECT SUMMARY Gaps and misconceptions in patient knowledge can contribute to poor care adherence, decreased quality of life, and even negative outcomes, especially in underserved populations. There is an urgent need to systematically capture, characterize, and develop mechanisms for breast cancer patient knowledge sharing. The objective of the proposed feasibility and acceptability pilot study is to capture lived experiences of breast cancer patients and characterize their knowledge types, levels, and gaps longitudinally. Topics include comprehension of illness (type, stage, prognosis), treatment decision making, navigating emergent events resulting in deviations from treatment trajectory (e.g. hospitalization for neutropenic fever). In a collaboration between human factors researcher, medical oncologist, and a patient partner, we will conduct semi-structured Cognitive Task Analysis interviews to elicit breast cancer patient experiences longitudinally (prior to first treatment, 6 months and 1 year after diagnosis). We recruit ~35 adult breast cancer patients. We will analyze interview data using thematic analysis and develop taxonomy of patient knowledge across the care continuum. The expected impact is: 1) understanding patient knowledge and gaps as a function of time/experience and 2) gaining insight into designing human-centered and culturally sensitive patient education.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $0 )
2026	2025	UNIVERSITY OF ILLINOIS	809 S MARSHFIELD AVE M/C 551	CHICAGO	IL	60612	COOK	USA	Cancer Cause and Prevention Research	000	2	2/6/2026	NON-COMPETING CONTINUATION	$0
														Subtotal = $0

Issue Date FY: 2025 ( Subtotal = $79,950 )
2025	2025	UNIVERSITY OF ILLINOIS	809 S MARSHFIELD AVE M/C 551	CHICAGO	IL	60612	COOK	USA	Cancer Cause and Prevention Research	000	2	3/20/2025	NON-COMPETING CONTINUATION	$79,950
														Subtotal = $79,950

Issue Date FY: 2024 ( Subtotal = $79,950 )
2024	2024	UNIVERSITY OF ILLINOIS	809 S MARSHFIELD AVE M/C 551	CHICAGO	IL	60612	COOK	USA	Cancer Cause and Prevention Research	000	1	3/26/2024	NEW	$79,950
														Subtotal = $79,950

Grand Total All Awards = $159,900

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Using Qualitative Methods to Capture Experiences of Breast Cancer Patients and Characterize Knowledge Types and Levels: The First Step in Informing Patient Knowledge Sharing

Award Number: R03CA283228

ORGANIZATION: NATIONAL CANCER INSTITUTE

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 04/01/2024

PERIOD OF PERFORMANCE END DATE: 03/31/2027

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