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Elder Mistreatment and Self-Neglect among People Living with Dementia and Their Caregivers

Award Number: R03AG104308
ORGANIZATION: NATIONAL INSTITUTE ON AGING
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 09/01/2026
PERIOD OF PERFORMANCE END DATE: 08/31/2028

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Elder Mistreatment and Self-Neglect among People Living with Dementia and Their Caregivers - Abstract Elder mistreatment (EM) and self-neglect (SN) among older adults with Alzheimer’s disease and related dementias (ADRD) are urgent but under-addressed public health challenges. Affecting an estimated 43% and 37% of older adults with ADRD respectively, EM and SN contribute to injury, functional decline, chronic illness exacerbation, institutionalization, and premature death. Yet little is known about ADRD-specific risk and protective factors, the impact of EM and SN on health outcomes, or how changes in dementia care delivery influence detection and response. The proposed research leverages the UCLA Alzheimer’s and Dementia Care (ADC) Program, which maintains a large, longitudinal dataset that includes structured data and rich, unstructured clinical notes from Dementia Care Specialists (DCS). Building on the PI’s prior work developing methods to abstract EM/SN information from DCS notes, this project will expand the existing dataset to include three cohorts of ADC patients (N=3,212) spanning pre- and post-implementation of the Centers for Medicare & Medicaid Services (CMS) Guiding an Improved Dementia Care Experience (GUIDE) model — a nationwide initiative that enhances structured assessment, caregiver support, and home visits. Aim 1 will identify individual-level risk and protective factors associated with documentation of EM/SN among older adults with ADRD. Aim 2 will determine whether documented EM/SN concern predicts survival and long-term care placement, adjusting for dementia severity and comorbidities. Aim 3 will leverage the GUIDE model as a natural experiment to examine how changes in dementia care delivery influence EM/SN detection and reporting, and whether GUIDE participation modifies associations between individual-level characteristics and EM/SN detection. This study will generate foundational evidence on the multilevel determinants of EM and SN in dementia care, elucidate the impact of these phenomena on patient outcomes, and assess the role new models of care can play in improving detection and response. Findings will inform the design of interventions that improve dementia care quality, enhance caregiver support, and advance elder justice.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $320,150 )
2026	2026	EDUCATION DEVELOPMENT CENTER, INC.	300 5TH AVE STE 2010	WALTHAM	MA	02451	MIDDLESEX	USA	Aging Research	000	1	8/31/2026	NEW	$320,150
														Subtotal = $320,150

Grand Total All Awards = $320,150

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Elder Mistreatment and Self-Neglect among People Living with Dementia and Their Caregivers

Award Number: R03AG104308

ORGANIZATION: NATIONAL INSTITUTE ON AGING

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 09/01/2026

PERIOD OF PERFORMANCE END DATE: 08/31/2028

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