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New Patient-centered Metric for Transplant Center Report Cards

Award Number: R01HS028829
ORGANIZATION: AGENCY FOR HEALTH CARE RESEARCH AND QUALITY
OPDIV: AHRQ
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 09/30/2022
PERIOD OF PERFORMANCE END DATE: 07/31/2027

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New Patient-centered Metric for Transplant Center Report Cards - Project Summary/Abstract Choosing a transplant center with the best outcomes can be challenging for patients. Several studies suggest that patients have a choice of centers, but that they are often unaware of how their options may differ. The PI, as Medical Director of the Scientific Registry of Transplant Recipients (SRTR), provides comparative information to the public about each solid organ transplant center in the United States. The risk adjusted outcomes, shown in center report cards, account for the transplant recipient’s health-related characteristics, donor characteristics and transplant related factors. Many transplant centers provide a print-out of this SRTR report card to their candidates to comply with Centers for Medicare & Medicaid Services rules. Unfortunately, in their current format, the center report cards provide three risk-adjusted metrics: survival on the waiting list, transplant rate, and 1-year post-transplant survival. Our randomized trial has shown that patients often do not prioritize the metric that is the most important predictor of mortality after listing. Thus, the SRTR report cards need to be revamped to instead focus on the entire continuum of care from the time of wait listing. The proposal aims to enhance and evaluate a patient-centered website and printouts of the SRTR report cards that will effectively communicate comparative information to transplant candidates about survival rate since listing at different centers. The project will use Dr. Hibbard’s published, conceptual model and develop a new report card in English and Spanish. Aim 1 will use focus groups to determine how the metric of survival rate since listing will be presented to transplant candidates clearly in a patient-centered report card. Using this information, Aim 2 will conduct usability sessions in English and Spanish to develop a patient-centered website and printouts of the SRTR report card. The new report cards will allow patients to best use both analytic and experiential modes of thinking to use the new metric for decision-making. Both the English and Spanish website will include a video navigator and a virtual chat agent to help patients navigate the web-based report cards. Lastly, Aim 3 will conduct randomized clinical trials (RCTs) in English and Spanish, separately, to evaluate the effectiveness of the new patient-centered SRTR report card. These RCTs will enroll potential transplant candidates prior to listing at a transplant center. This study is beyond the scope of the SRTR contract. At the end of the project, we will help patients choose a transplant center by using the English and Spanish versions of the new report cards that provide information about survival rate since listing. The new report cards can improve a broad set of patient-centered outcomes such as effectively navigating the complexity of transplant centers, improving satisfaction with the center selection process, and potentially reducing death on the waiting list, — thereby, producing better outcomes in the long run.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2025 ( Subtotal = $387,869 )
2025	2025	UNIVERSITY OF TEXAS MEDICAL BRANCH AT GALVESTON	301 UNIVERSITY BLVD	GALVESTON	TX	77555	GALVESTON	USA	Research on Healthcare Costs, Quality and Outcomes	002	5	9/23/2025	NON-COMPETING CONTINUATION	$387,869
2025	2024	HENNEPIN HEALTHCARE RESEARCH INSTITUTE	701 PARK AVE	MINNEAPOLIS	MN	55415	HENNEPIN	USA	Research on Healthcare Costs, Quality and Outcomes	000	3	3/27/2025	NON-COMPETING CONTINUATION	-$391,155
2025	2024	UNIVERSITY OF TEXAS MEDICAL BRANCH AT GALVESTON	301 UNIVERSITY BLVD	GALVESTON	TX	77555	GALVESTON	USA	Research on Healthcare Costs, Quality and Outcomes	001	4	3/27/2025	CHANGE OF GRANTEE / TRAINING INSTITUTION / AWARDING INSTITUTION	$391,155
														Subtotal = $387,869

Issue Date FY: 2024 ( Subtotal = $391,155 )
2024	2024	HENNEPIN HEALTHCARE RESEARCH INSTITUTE	701 PARK AVE	MINNEAPOLIS	MN	55415	HENNEPIN	USA	Research on Healthcare Costs, Quality and Outcomes	001	3	7/15/2024	NON-COMPETING CONTINUATION	$391,155
2024	2023	HENNEPIN HEALTHCARE RESEARCH INSTITUTE	701 PARK AVE	MINNEAPOLIS	MN	55415	HENNEPIN	USA	Research on Healthcare Costs, Quality and Outcomes	000	2	12/14/2023	NON-COMPETING CONTINUATION	$0
														Subtotal = $391,155

Issue Date FY: 2023 ( Subtotal = $394,823 )
2023	2023	HENNEPIN HEALTHCARE RESEARCH INSTITUTE	701 PARK AVE	MINNEAPOLIS	MN	55415	HENNEPIN	USA	Research on Healthcare Costs, Quality and Outcomes	000	2	8/1/2023	NON-COMPETING CONTINUATION	$394,823
														Subtotal = $394,823

Issue Date FY: 2022 ( Subtotal = $396,858 )
2022	2022	HENNEPIN HEALTHCARE RESEARCH INSTITUTE	701 PARK AVE	MINNEAPOLIS	MN	55415	HENNEPIN	USA	Research on Healthcare Costs, Quality and Outcomes	000	1	9/14/2022	NEW	$396,858
														Subtotal = $396,858

Grand Total All Awards = $1,570,705

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New Patient-centered Metric for Transplant Center Report Cards

Award Number: R01HS028829

ORGANIZATION: AGENCY FOR HEALTH CARE RESEARCH AND QUALITY

OPDIV: AHRQ

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 09/30/2022

PERIOD OF PERFORMANCE END DATE: 07/31/2027

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