Wednesday, December 31, 2025 12/31/2025

Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE)

Award Number: R01HG012841
ORGANIZATION: NATIONAL HUMAN GENOME RESEARCH INSTITUTE
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 09/01/2023
PERIOD OF PERFORMANCE END DATE: 06/30/2027

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Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE) - PROJECT SUMMARY Centering justice in bioethics is critical to promoting research on the ethical and equitable development and deployment of emerging biotechnologies. Building capacity for more effective and relevant bioethics requires not only engagement with multidisciplinary scholarship but also scholars historically underrepresented in bioethics and in other disciplines and adjacent fields. Few mechanisms exist for supporting sustained and substantive dialogue on justice and applying frameworks to real-world efforts in the development and deployment of biotechnologies. This project addresses this gap by creating a mechanism for trainees across disciplines to engage ethical frameworks that focus on justice and equity, and to develop an academic network in bioethics. Our proposal aims to build capacity in bioethics research through sustained and systematic multidisciplinary explorations, dialogues, and the development of educational materials on justice frameworks. To achieve these objectives, we have two objectives: 1) to create a hybrid series “Justice Dialogues” a virtual monthly series that will feature speakers whose scholarship focuses on justice theories and frameworks, and convene scholars from disciplines beyond bioethics, such as science, technology and society studies, gender and ethnic studies to engage theories and frameworks of justice and their applications in research of the development and deployment of biotechnologies, including in genomics, AI, and precision medicine; and 2) to develop and disseminate educational resources to train scholars and scientists to engage research questions of justice in the ethical and equitable development and deployment of emerging biotechnologies through a publicly accessible website dedicated to disseminating recordings of didactic presentations, synchronous group discussions, curated literature collections and other related resources.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $0 )
2026	2024	THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK	630 W 168TH ST FL 4	NEW YORK	NY	10032	NEW YORK	USA	Human Genome Research	000	2	12/18/2025	SUPPLEMENT FOR EXPANSION	$0
														Subtotal = $0

Issue Date FY: 2025 ( Subtotal = $727,215 )
2025	2025	THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK	630 W 168TH ST FL 4	NEW YORK	NY	10032	NEW YORK	USA	Human Genome Research	005	3	9/12/2025	NON-COMPETING CONTINUATION	$727,215
2025	2024	THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK	630 W 168TH ST FL 4	NEW YORK	NY	10032	NEW YORK	USA	Human Genome Research	000	2	10/17/2024	NON-COMPETING CONTINUATION	$0
2025	2024	THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK	630 W 168TH ST FL 4	NEW YORK	NY	10032	NEW YORK	USA	Human Genome Research	004	2	7/10/2025	SUPPLEMENT FOR EXPANSION	$0
2025	2024	THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK	630 W 168TH ST FL 4	NEW YORK	NY	10032	NEW YORK	USA	Human Genome Research	002	2	3/14/2025	SUPPLEMENT FOR EXPANSION	$0
2025	2024	THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK	630 W 168TH ST FL 4	NEW YORK	NY	10032	NEW YORK	USA	Human Genome Research	003	2	7/9/2025	NON-COMPETING CONTINUATION	$0
2025	2024	THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK	630 W 168TH ST FL 4	NEW YORK	NY	10032	NEW YORK	USA	Human Genome Research	001	2	3/14/2025	NON-COMPETING CONTINUATION	$0
														Subtotal = $727,215

Issue Date FY: 2024 ( Subtotal = $901,660 )
2024	2024	THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK	630 W 168TH ST FL 4	NEW YORK	NY	10032	NEW YORK	USA	Human Genome Research	001	2	9/24/2024	SUPPLEMENT FOR EXPANSION	$164,087
2024	2024	THE TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK	630 W 168TH ST FL 4	NEW YORK	NY	10032	NEW YORK	USA	Human Genome Research	000	2	9/23/2024	NON-COMPETING CONTINUATION	$737,573
														Subtotal = $901,660

Issue Date FY: 2023 ( Subtotal = $817,541 )
2023	2023	TRUSTEES OF COLUMBIA UNIVERSITY IN THE CITY OF NEW YORK, THE	630 W 168TH ST FL 4	NEW YORK	NY	10032	NEW YORK	USA	Human Genome Research	000	1	8/18/2023	NEW	$817,541
														Subtotal = $817,541

Grand Total All Awards = $2,446,416

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Just Inclusion and Equity: Negotiating Community-Research Partnerships in Genomics Research (JUSTICE)

Award Number: R01HG012841

ORGANIZATION: NATIONAL HUMAN GENOME RESEARCH INSTITUTE

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 09/01/2023

PERIOD OF PERFORMANCE END DATE: 06/30/2027

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