Official websites use .gov

A .gov website belongs to an official government organization in the United States.

Secure .gov websites use HTTPS

A lock ( 🔒 ) or https:// means you've safely connected to the .gov website. Share sensitive information only on official, secure websites.

Need Help

Effects of health policy on the health of people with systemic autoimmune and rheumatic diseases

Award Number: R01HD118690
ORGANIZATION: NATIONAL INSTITUTE OF CHILD HEALTH AND HUMAN DEVELOPMENT
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 05/25/2025
PERIOD OF PERFORMANCE END DATE: 02/28/2030

Group Awards By:

View Award Description

Effects of health policy on the health of people with systemic autoimmune and rheumatic diseases - Systemic autoimmune and rheumatic diseases (SARDs) most often occur in women (80% of people with autoimmunity are women). Past research has shown that women with SARDs have a significantly increased risk of adverse pregnancy outcomes compared to the general population. However, little research has investigated health policies, the delivery of healthcare to people with SARDs, particularly around healthcare quality and access to effective treatment, and any associations on their health during reproductive years and the pregnancy and postpartum period. Similarly, little research has investigated the medical decision-making of rheumatologists—specialists in the healthcare of people with SARDs—and health policies. Using multi-method approaches, this study will provide an assessment of health policies and health outcomes and healthcare of reproductive-age women with SARDs. We will qualitatively interview women with SARDs who are or have been pregnant to understand their experiences with fertility and access to pregnancy care. We will interview rheumatologists to assess policy influences on medical decision-making, prescribing practices, and referrals for pregnancy and perinatal care. Using national claims data, we will evaluate pregnancy outcomes among women with SARDs (e.g., severe maternal morbidity), and healthcare-related outcomes among non-pregnant women with SARDs (e.g., prescription medication use). Findings from the study will inform a policy and public health response that enhances patient-centered healthcare for women with SARDs.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $668,861 )
2026	2026	UNIVERSITY OF PITTSBURGH - OF THE COMMONWEALTH SYSTEM OF HIGHER EDUCATION	4200 FIFTH AVENUE	PITTSBURGH	PA	15260	ALLEGHENY	USA	Child Health and Human Development Extramural Research	000	2	4/7/2026	NON-COMPETING CONTINUATION	$668,861
														Subtotal = $668,861

Issue Date FY: 2025 ( Subtotal = $673,538 )
2025	2025	UNIVERSITY OF PITTSBURGH - OF THE COMMONWEALTH SYSTEM OF HIGHER EDUCATION	4200 FIFTH AVENUE	PITTSBURGH	PA	15260	ALLEGHENY	USA	Child Health and Human Development Extramural Research	000	1	5/24/2025	NEW	$673,538
														Subtotal = $673,538

Grand Total All Awards = $1,342,399

Top

All Categories

About

Search

Reports

Data Submission

Award Information

Effects of health policy on the health of people with systemic autoimmune and rheumatic diseases

Award Number: R01HD118690

ORGANIZATION: NATIONAL INSTITUTE OF CHILD HEALTH AND HUMAN DEVELOPMENT

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 05/25/2025

PERIOD OF PERFORMANCE END DATE: 02/28/2030

Federal Websites

Department of Health & Human Services

HHS Operating Divisions

HHS Staff Divisions

Download A Document Viewer