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Wellbeing and Health Among Low Vision and Blind Youth

Award Number: R01EY036676
ORGANIZATION: NATIONAL EYE INSTITUTE
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 09/01/2024
PERIOD OF PERFORMANCE END DATE: 04/30/2029

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Wellbeing and Health Among Low Vision and Blind Youth - Abstract: Approximately 3% (500,000) American children are blind or visually impaired – defined as having difficulty seeing even with correction. Children who are blind or visually impaired (CBVI) report lower health related quality of life and experience higher rates of chronic health conditions and mental health disorders compared to children with typical vision. Despite the prevalence of childhood blindness being greater than or equal to other rare, but well-researched, childhood conditions (e.g., childhood leukemia), research is virtually nonexistent regarding psychological, social, and environmental factors that directly (and uniquely) impact the wellbeing, health, and development of CBVI. Thus, there is a critical need to understand how psychosocial and developmental factors contribute to mental and physical health outcomes among CBVI. The objective of this research project is to extend and expand our preliminary findings that highlighted a link between negative psychosocial experiences and poorer physical and mental health of CBVI by: (1) recruiting a first of its kind, large, national sample of CBVI; (2) obtaining detailed measures of external negative social experiences including bullying, peer rejection, and social isolation and the negative affective states and cognitions that result from these experiences from the perspectives of both caregivers and children; (3) using advanced multivariate analytic techniques to identify the contributions of these factors – beyond other relevant contributors to health – to physical and mental health outcomes among CBVI; and (4) obtaining multi-method, multi-informant assessments of physical and mental health status to further validate our findings. By elucidating how the social environment of CBVI contribute to the physical and mental health and wellbeing of these children, the proposed research will foster the development of interventions aimed at improving long-term health outcomes and promoting resilience among CBVI – thereby having an important positive impact on the growth, wellbeing, and development of this population. We will achieve the overall objectives of this proposal by assessing 500 CBVI ages 9-17 and their caregivers from across the United States with respect to both external and internal processes related to their social interactions and experiences and child physical and mental health status. We will collect data on potentially relevant covariates including nature of visual impairment and presence of other disabilities.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2026 ( Subtotal = $717,379 )
2026	2026	TEXAS TECH UNIVERSITY SYSTEM	2500 BROADWAY	LUBBOCK	TX	79409	LUBBOCK	USA	Vision Research	000	3	5/11/2026	NON-COMPETING CONTINUATION	$717,379
														Subtotal = $717,379

Issue Date FY: 2025 ( Subtotal = $746,801 )
2025	2025	TEXAS TECH UNIVERSITY SYSTEM	2500 BROADWAY	LUBBOCK	TX	79409	LUBBOCK	USA	Vision Research	000	2	4/10/2025	NON-COMPETING CONTINUATION	$746,801
														Subtotal = $746,801

Issue Date FY: 2024 ( Subtotal = $810,430 )
2024	2024	TEXAS TECH UNIVERSITY SYSTEM	2500 BROADWAY	LUBBOCK	TX	79409	LUBBOCK	USA	Vision Research	000	1	7/29/2024	NEW	$810,430
2024	2024	TEXAS TECH UNIVERSITY SYSTEM	2500 BROADWAY	LUBBOCK	TX	79409	LUBBOCK	USA	Vision Research	001	1	8/1/2024	NEW	$0
														Subtotal = $810,430

Grand Total All Awards = $2,274,610

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Wellbeing and Health Among Low Vision and Blind Youth

Award Number: R01EY036676

ORGANIZATION: NATIONAL EYE INSTITUTE

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 09/01/2024

PERIOD OF PERFORMANCE END DATE: 04/30/2029

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