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Patient reported outcomes, COVID-19 knowledge and perceived risks, and healthcare among deaf and hard of hearing adults in the U.S.

Award Number: R01DC014463
ORGANIZATION: NATIONAL INSTITUTE ON DEAFNESS AND OTHER COMMUNICATION DISORDERS
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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Current widely used NIH-funded patient reported outcome measurement systems (PROMIS) include domains that assess global, physical, mental, and social health from the patient’s perspective. PROMIS is heavily dependent on English, which is a serious barrier to DHH patients who use American Sign Language (ASL) and demonstrate low English proficiency. In 2015, PI Kushalnagar was awarded an R01 to address this knowledge gap through 1) linguistic and psychometric validation of PROMIS- Deaf Profile in ASL and 2) cross-sectional analysis of patient reported outcomes (PROs) in an U.S. sample of DHH adults who use ASL. We have added revised aims to address the urgent issues related to coronavirus. This revision application addresses an immediate need to create an online ASL/English survey to quickly deploy and assess an underserved DHH population’s knowledge/attitude toward physical distancing, self-perceived risk for COVID-19, patient-physician communication, and healthcare access experience. This study will also gather new data from key stakeholders that works with this population; and will be used to inform the correct interpretation of the quantitative findings from PROs and COVID- 19 data. Together, using mixed methods approach, the team will integrate quantitative PROs and COVID-19 data with stakeholder qualitative data to enlighten new findings and provide the necessary foundation for public health policy and program strategies aimed at improving human communication in DHH population.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = -$163,228 )
2024	2020	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	000	5	3/19/2024	SUPPLEMENT FOR EXPANSION	-$163,228
														Subtotal = -$163,228

Issue Date FY: 2022 ( Subtotal = $0 )
2022	2019	GALLAUDET UNIVERSITY	800 FLORIDA AVENUE, NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	000	5	8/30/2022	NON-COMPETING CONTINUATION	$0
														Subtotal = $0

Issue Date FY: 2021 ( Subtotal = -$99,669 )
2021	2019	GALLAUDET UNIVERSITY	800 FLORIDA AVENUE, NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	001	5	8/6/2021	NON-COMPETING CONTINUATION	$0
2021	2019	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	000	5	11/6/2020	SUPPLEMENT FOR EXPANSION	-$99,669
														Subtotal = -$99,669

Issue Date FY: 2020 ( Subtotal = $179,842 )
2020	2020	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	003	5	5/5/2020	SUPPLEMENT FOR EXPANSION	$179,842
2020	2019	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	002	5	4/14/2020	NON-COMPETING CONTINUATION	$0
2020	2019	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	001	5	12/11/2019	SUPPLEMENT FOR EXPANSION	$0
2020	2019	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	000	5	12/11/2019	SUPPLEMENT FOR EXPANSION	$0
														Subtotal = $179,842

Issue Date FY: 2019 ( Subtotal = $717,566 )
2019	2019	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	006	5	8/28/2019	SUPPLEMENT FOR EXPANSION	$99,669
2019	2019	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	003	5	8/13/2019	SUPPLEMENT FOR EXPANSION	$236,541
2019	2019	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	004	5	8/14/2019	SUPPLEMENT FOR EXPANSION	$199,350
2019	2019	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	002	5	8/7/2019	NON-COMPETING CONTINUATION	$230,400
2019	2019	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	005	5	8/20/2019	NON-COMPETING CONTINUATION	-$48,394
2019	2016	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	000	2	1/9/2019	CHANGE OF GRANTEE / TRAINING INSTITUTION / AWARDING INSTITUTION	$32,525
2019	2015	ROCHESTER INSTITUTE OF TECHNOLOGY (INC)	1 LOMB MEMORIAL DR	ROCHESTER	NY	14623	MONROE	USA	Research Related to Deafness and Communication Disorders	001	1	1/9/2019	SUPPLEMENT FOR EXPANSION	-$32,525
														Subtotal = $717,566

Issue Date FY: 2018 ( Subtotal = $545,734 )
2018	2018	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	002	4	8/16/2018	SUPPLEMENT FOR EXPANSION	$187,476
2018	2018	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	000	4	8/1/2018	NON-COMPETING CONTINUATION	$307,014
2018	2018	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	001	4	8/3/2018	SUPPLEMENT FOR EXPANSION	$51,244
														Subtotal = $545,734

Issue Date FY: 2017 ( Subtotal = $406,760 )
2017	2017	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	001	3	8/31/2017	SUPPLEMENT FOR EXPANSION	$97,802
2017	2017	GALLAUDET UNIVERSITY	800 FLORIDA AVE NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	000	3	8/23/2017	NON-COMPETING CONTINUATION	$308,958
														Subtotal = $406,760

Issue Date FY: 2016 ( Subtotal = $371,840 )
2016	2016	GALLAUDET UNIVERSITY	800 FLORIDA AVENUE, NE	WASHINGTON	DC	20002	DISTRICT OF COLUMBIA	USA	Research Related to Deafness and Communication Disorders	000	2	7/22/2016	CHANGE OF GRANTEE / TRAINING INSTITUTION / AWARDING INSTITUTION	$371,840
														Subtotal = $371,840

Issue Date FY: 2015 ( Subtotal = $395,543 )
2015	2015	ROCHESTER INSTITUTE OF TECHNOLOGY	ONE LOMB MEMORIAL DRIVE	ROCHESTER	NY	14623	MONROE	USA	Research Related to Deafness and Communication Disorders	001	1	9/10/2015	SUPPLEMENT FOR EXPANSION	$68,621
2015	2015	ROCHESTER INSTITUTE OF TECHNOLOGY	ONE LOMB MEMORIAL DRIVE	ROCHESTER	NY	14623	MONROE	USA	Research Related to Deafness and Communication Disorders	000	1	7/27/2015	NEW	$326,922
														Subtotal = $395,543

Grand Total All Awards = $2,354,388

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Patient reported outcomes, COVID-19 knowledge and perceived risks, and healthcare among deaf and hard of hearing adults in the U.S.

Award Number: R01DC014463

ORGANIZATION: NATIONAL INSTITUTE ON DEAFNESS AND OTHER COMMUNICATION DISORDERS

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

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