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SHARES: Substance use HeAlth REcord Sharing

Award Number: R01DA056984
ORGANIZATION: NATIONAL INSTITUTE ON DRUG ABUSE
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 08/01/2023
PERIOD OF PERFORMANCE END DATE: 05/31/2028

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SHARES: Substance use HeAlth REcord Sharing - PROJECT SUMMARY Integrated care is critical and becoming more common, but balancing the privacy needs of patients with substance use disorders (SUD) and increasing patient safety through data access is a challenge to realizing its full potential. Our previous award (R01MH108992) found: 1) a general dearth of research on SUD data privacy and confidentiality; 2) few publications on how SUD data sharing protections impact care; 3) inadequate interdisciplinary research on SUD data protections; 4) minimal inclusion of patients and advocates in SUD data privacy literature; 5) sparse quantitative and qualitative research on SUD data privacy (opinions and legal reviews are predominant); and 6) low accuracy for electronic health record sensitive data segmentation software sponsored by the Substance Abuse and Mental Health Services Administration (SAMHSA). The focus is to amplify patients’ and providers' voices on Substance use HeAlth REcord Sharing (SHARES). Research question: Elucidate SUD data sharing challenges and the feasibility of automated data segmentation to improve data interoperability and health care for those with SUD. Study sites: three integrated clinics, a health system, a SUD treatment clinic, a health plan and a state’s health information exchange. Specific aims: Aim 1: Explore patient and provider views on SUD data sharing and health care to inform policies on SUD data privacy and confidentiality; Aim 2: Demonstrate the feasibility and accuracy of automated SUD data segmentation by proposing novel informatics methods and tools that advance automated SUD data segmentation; Aim 3: Evaluate the clinical accuracy and impact of automated SUD data segmentation demonstrating that patient-controlled data sharing improves service delivery and SUD patient outcomes. Impact: SHARES introduces novel, standard-based, institution-independent, EHR-agnostic and scalable sensitive health data segmentation methods and technology to improve data sharing and interoperability between healthcare institutions and service delivery and patient outcomes for those with SUD.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2025 ( Subtotal = $632,566 )
2025	2025	ARIZONA STATE UNIVERSITY	660 S MILL AVENUE STE 204	TEMPE	AZ	85281	MARICOPA	USA	Drug Use and Addiction Research Programs	000	8	5/19/2025	NON-COMPETING CONTINUATION	$632,566
														Subtotal = $632,566

Issue Date FY: 2024 ( Subtotal = $632,566 )
2024	2024	ARIZONA STATE UNIVERSITY	660 S MILL AVENUE STE 204	TEMPE	AZ	85281	MARICOPA	USA	Drug Use and Addiction Research Programs	000	7	5/23/2024	NON-COMPETING CONTINUATION	$632,566
														Subtotal = $632,566

Issue Date FY: 2023 ( Subtotal = $674,172 )
2023	2023	ARIZONA STATE UNIVERSITY	660 S MILL AVENUE STE 204	TEMPE	AZ	85281	MARICOPA	USA	Drug Use and Addiction Research Programs	000	6	7/12/2023	CHANGE OF GRANTEE / TRAINING INSTITUTION / AWARDING INSTITUTION	$674,172
														Subtotal = $674,172

Grand Total All Awards = $1,939,304

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SHARES: Substance use HeAlth REcord Sharing

Award Number: R01DA056984

ORGANIZATION: NATIONAL INSTITUTE ON DRUG ABUSE

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 08/01/2023

PERIOD OF PERFORMANCE END DATE: 05/31/2028

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