Thursday, July 3, 2025 7/3/2025

Impact of Registry Use on Quality and Outcomes in Rheumatology (QORA)

Award Number: R01AR079566
ORGANIZATION: NATIONAL INSTITUTE OF ARTHRITIS & MUSCULOSKELETAL & SKIN DISEASES
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)
PERIOD OF PERFORMANCE START DATE: 07/16/2021
PERIOD OF PERFORMANCE END DATE: 05/31/2026

Group Awards By:

View Award Description

Impact of Registry Use on Quality and Outcomes in Rheumatology (QORA) - PROJECT SUMMARY / ABSTRACT The American College of Rheumatology launched the RISE registry in 2014. RISE is a federally Qualified Clinical Data Registry (QCDR) that passively collects data from the EHRs of participating providers, aggregates and analyzes data centrally and continuously feeds back performance on quality measures to practices via a web-based dashboard. RISE has grown into one of the largest rheumatology registries in the world, with 2 million patients with 20 million encounters. However, research is needed to quantify RISE's impact on quality and outcomes and to explore the specific mechanisms by which its health IT infrastructure influences clinical practice. The proposed study will employ a mixed methods approach to examine variations in use of the RISE registry web-based dashboard and explore the consequences of this variation on quality of care and clinical outcomes. We will focus on rheumatoid arthritis (RA), the most common inflammatory arthritis affecting 1.3 million Americans, and an area with several nationally-endorsed quality measures. Our central hypothesis is that participation and active engagement with the data and tools available on the RISE dashboard leads to improvements in quality and outcomes over time. The proposed Impact of Registry Use on Quality and Outcomes in Rheumatology (QORA) project aims include 1) analyzing physician and practice-level variation in patterns of RISE dashboard use by analyzing the extensive audit-log data in the RISE data warehouse; 2) investigating the impact of participation and engagement with the RISE registry on quality of care and clinical outcomes, and 3) identifying strategies for redesigning tools available on the RISE dashboard to improve its usability and its effectiveness for local quality improvement. For this last aim, we will perform a series of semi-structured interviews and field observations with users of RISE in different rheumatology practice settings and work with a team of human-centered design experts. The proposed work will allow us to generate evidence to improve RISE and maximize its impact on quality of care and outcomes for people with rheumatic diseases. The study will also generate data to support a core public health priority for NIAMS: improving the quality of rheumatologic care delivery in the U.S.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2025 ( Subtotal = $627,369 )
2025	2025	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94103	SAN FRANCISCO	USA	Arthritis, Musculoskeletal and Skin Diseases Research	001	5	5/20/2025	NON-COMPETING CONTINUATION	$627,369
2025	2024	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94103	SAN FRANCISCO	USA	Arthritis, Musculoskeletal and Skin Diseases Research	000	4	11/5/2024	NON-COMPETING CONTINUATION	$0
														Subtotal = $627,369

Issue Date FY: 2024 ( Subtotal = $643,166 )
2024	2024	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94103	SAN FRANCISCO	USA	Arthritis, Musculoskeletal and Skin Diseases Research	000	4	7/1/2024	NON-COMPETING CONTINUATION	$643,166
														Subtotal = $643,166

Issue Date FY: 2023 ( Subtotal = $682,413 )
2023	2023	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94143	SAN FRANCISCO	USA	Arthritis, Musculoskeletal and Skin Diseases Research	000	3	7/17/2023	NON-COMPETING CONTINUATION	$682,413
														Subtotal = $682,413

Issue Date FY: 2022 ( Subtotal = $649,667 )
2022	2022	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94143	SAN FRANCISCO	USA	Arthritis, Musculoskeletal and Skin Diseases Research	000	2	6/22/2022	NON-COMPETING CONTINUATION	$649,667
														Subtotal = $649,667

Issue Date FY: 2021 ( Subtotal = $709,613 )
2021	2021	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94143	SAN FRANCISCO	USA	Arthritis, Musculoskeletal and Skin Diseases Research	000	1	7/16/2021	NEW	$709,613
														Subtotal = $709,613

Grand Total All Awards = $3,312,228

Top

All Categories

About

Search

Reports

Data Submission

Award Information

Impact of Registry Use on Quality and Outcomes in Rheumatology (QORA)

Award Number: R01AR079566

ORGANIZATION: NATIONAL INSTITUTE OF ARTHRITIS & MUSCULOSKELETAL & SKIN DISEASES

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: SCIENTIFIC/HEALTH RESEARCH (INCLUDES SURVEYS)

PERIOD OF PERFORMANCE START DATE: 07/16/2021

PERIOD OF PERFORMANCE END DATE: 05/31/2026

Federal Websites

Department of Health & Human Services

HHS Operating Divisions

HHS Staff Divisions

Download A Document Viewer