Wednesday, May 21, 2025 5/21/2025

Creation of a Trusted Data Broker, Development of a Data Access Platform and Design of a Public Private Partnership to Implement the NIH's Data COUNTS Program for Access to Quality Data.

Award Number: OT2OD039723
ORGANIZATION: OFFICE OF THE DIRECTOR, NIH
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: OTHER

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Creation of a Trusted Data Broker, Development of a Data Access Platform and Design of a Public Private Partnership to Implement the NIH's Data COUNTS Program for Access to Quality Data. - Data COUNTS Trusted Data Broker Abstract for FNIH OT Proposal Creation of Trusted Data Broker to Implement Data COUNTS Program September 16, 2024 The Data Collect Once Use Numerous TimeS (Data COUNTS) initiative will facilitate better data access to address health outcomes, eliminate costly and burdensome data collection processes, and improve the quality and speed of time-to-access data. The intent of Data COUNTS is to deliver a federated electronic health record (EHR) and health data collection and transmission architecture based on open-industry data and interoperability standards for HHS. The FNIH will use its extensive experience designing, soliciting, and managing complex data infrastructures and public-private partnerships in the health sciences ?eld to establish a Trusted Data Broker (TDB). The TBD will establish a secure, cloud-based platform for quality-controlled data collection, transmission, and analysis. The TDB will establish the necessary relationships and governing bodies to coordinate activities across all stakeholders, from data ingestion to analysis. The system will use extensive provenance and data lineage tracking and a robust data model to enable HHS researchers to interrogate patient data in novel ways. The FNIH is committed to meeting the goals of the Data COUNTS initiative and revolutionizing health science capabilities, addressing a critical gap in the United States’ ability to advance biomedical sciences compared to other industrial nations. Patient engagement and trust will be central features of all activities, and the system will be designed and implemented with the eventual goal to empower patients with full control and transparency over how their data are accessed and used. The ?rst year of the project will focus on (1) design and implementation of a phased strategic plan for creation of the TDB, (2) creation of an engagement strategy and a management strategy, and (3) securing technical contractor(s) to design and deliver a minimal viable product to execute HHS-de?ned use cases. Activities in the ?rst year will lay the foundation for sustainable and scalable development in the future.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2025 ( Subtotal = $2,499,856 )
2025	2025	FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH, INC	11400 ROCKVILLE PIKE STE 600	NORTH BETHESDA	MD	20852	MONTGOMERY	USA	Trans-NIH Research Support	000	1	1/17/2025	SUPPLEMENT FOR EXPANSION	$2,499,856
														Subtotal = $2,499,856

Issue Date FY: 2024 ( Subtotal = $3,999,961 )
2024	2024	FOUNDATION FOR THE NATIONAL INSTITUTES OF HEALTH, INC	11400 ROCKVILLE PIKE STE 600	NORTH BETHESDA	MD	20852	MONTGOMERY	USA	Trans-NIH Research Support	000	1	9/25/2024	NEW	$3,999,961
														Subtotal = $3,999,961

Grand Total All Awards = $6,499,817

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Creation of a Trusted Data Broker, Development of a Data Access Platform and Design of a Public Private Partnership to Implement the NIH's Data COUNTS Program for Access to Quality Data.

Award Number: OT2OD039723

ORGANIZATION: OFFICE OF THE DIRECTOR, NIH

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: OTHER

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