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PRIDEnet for the All of Us Research Program

Award Number: OT2OD025276
ORGANIZATION: OFFICE OF THE DIRECTOR, NIH
OPDIV: NIH
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: OTHER
PERIOD OF PERFORMANCE START DATE: 07/23/2017
PERIOD OF PERFORMANCE END DATE: 03/14/2025

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PRIDEnet for the All of Us Research Program - The All of Us Research Program has an explicit goal to enroll at least 1 million people from all communities to reflect the rich diversity of our nation. To truly engage our broad national diversity, a specific focus on sexual and gender minority (SGM) individuals is critical. Engaging SGM people will help ensure equitable representation of the US population in All of Us, biological heterogeneity for high-quality discovery science, and diverse input in All of Us-based research via citizen-scientists and traditional researchers. Our proposal aims to engage SGM people on a national scale to help the All of Us Research Program realize its ambitious goals. SGM people – including members of the lesbian, gay, bisexual, transgender, and queer (LGBTQ) communities – are everywhere, demographically diverse, and represent all segments of society. SGM people account for an estimated 4.1% (~13 million people) of the US population. SGM individuals compose an identity-based population that includes sexual minorities (individuals with a sexual orientation that is not heterosexual) and gender minorities (individuals with a gender identity that is not congruent with their sex assigned at birth). SGM communities share a common experience of social marginalization, legal discrimination, political disenfranchisement, and familial rejection. Despite limited data, SGM people are believed to live in nearly all counties in the United States, be a part of other underrepresented minority groups, be in every socioeconomic stratum, and speak the diversity of languages in our nation. To examine this, we recently analyzed all the last three years (2013-2015) of National Health Interview Survey (NHIS) data (manuscript under review) and found that self-identified lesbian, gay, and bisexual people were primarily younger (28% were 18-29 years old, 17% were 30-39, 20% were 40-49, 26% were 50-64, and 9% were 65 years or older). Approximately 14% were of Hispanic ethnicity. Regarding race, 80% were Caucasian, 15% were African/African-American, and 5% were another race. Approximately 30% reported an annual earned income of $0 while 11% reported earning more than $75,000. SGM people are largely invisible in federal population-based efforts because they are not counted. Because sexual orientation and gender identity are not collected during the decennial US Census, the precise number of SGM people in the US as well as their age, geographic, linguistic, race, ethnicity, income, and regional distributions are unknown. Without these data, national population-based studies (e.g., National Health and Nutrition Examination Survey, NHANES) are unable to generate sampling frames that adequately account for the disproportionate geographic distribution of SGM people (e.g., San Francisco city census reports that ~15% identify as SGM). In 2010, the NIH commissioned the Institute of Medicine (now National Academy of Medicine) to study SGM health to inform the nation’s SGM health research agenda. In addition to recommending research in nearly all aspects of health, the consensus committee poignantly stated, “[t]he relative lack of population-based data presents the greatest challenge to describing the health status and health-related needs of LGBT people” and emphasized the need for national research efforts, such as All of Us, to explicitly include data measures or questions about SGM identity. This report and other research led the National Center for Health Statistics to include sexual orientation in the NHIS and the NIH to designate the SGM population as a “health disparity population for research purposes” in October 2016. SGM people are an underserved and understudied population that is vulnerable to poor health. SGM people experience unique health and healthcare disparities including higher rates of smoking, HIV infection, certain cancers, depression, suicide attempts, and delaying access to health care. Infrequent collection of sexual orientation and gender identity data i


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2025 ( Subtotal = $0 )
2025	2024	THE LELAND STANFORD JUNIOR UNIVERSITY	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	001	3	11/15/2024	EXTENSION WITH OR WITHOUT FUNDS	$234,124
2025	2024	THE LELAND STANFORD JUNIOR UNIVERSITY	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	002	3	4/4/2025	EXTENSION WITH OR WITHOUT FUNDS	$0
2025	2023	THE LELAND STANFORD JUNIOR UNIVERSITY	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	21st Century Cures Act - Precision Medicine Initiative	000	2	11/15/2024	SUPPLEMENT FOR EXPANSION	-$234,124
														Subtotal = $0

Issue Date FY: 2024 ( Subtotal = $1,444,263 )
2024	2024	THE LELAND STANFORD JUNIOR UNIVERSITY	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	000	3	7/12/2024	EXTENSION WITH OR WITHOUT FUNDS	$1,394,263
2024	2024	THE LELAND STANFORD JUNIOR UNIVERSITY	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	001	3	9/11/2024	EXTENSION WITH OR WITHOUT FUNDS	$50,000
														Subtotal = $1,444,263

Issue Date FY: 2023 ( Subtotal = $3,815,433 )
2023	2023	THE LELAND STANFORD JUNIOR UNIVERSITY	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	004	2	7/25/2023	SUPPLEMENT FOR EXPANSION	$0
2023	2023	THE LELAND STANFORD JUNIOR UNIVERSITY	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	21st Century Cures Act - Precision Medicine Initiative	005	2	7/28/2023	SUPPLEMENT FOR EXPANSION	$0
2023	2023	THE LELAND STANFORD JUNIOR UNIVERSITY	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	001	2	1/24/2023	SUPPLEMENT FOR EXPANSION	$841,192
2023	2023	THE LELAND STANFORD JUNIOR UNIVERSITY	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	21st Century Cures Act - Precision Medicine Initiative	003	2	6/30/2023	SUPPLEMENT FOR EXPANSION	$3,001,929
2023	2018	THE LELAND STANFORD JUNIOR UNIVERSITY	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	002	2	6/15/2023	CHANGE OF GRANTEE / TRAINING INSTITUTION / AWARDING INSTITUTION	$0
2023	2018	THE SAN FRANCISCO GENERAL HOSPITAL FOUNDATION	2789 25TH ST	SAN FRANCISCO	CA	94110	SAN FRANCISCO	USA	Trans-NIH Research Support	000	1	1/4/2023	SUPPLEMENT FOR EXPANSION	-$27,688
														Subtotal = $3,815,433

Issue Date FY: 2022 ( Subtotal = $2,131,927 )
2022	2022	LELAND STANFORD JUNIOR UNIVERSITY, THE	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	001	2	8/9/2022	SUPPLEMENT FOR EXPANSION	$2,131,927
2022	2018	LELAND STANFORD JUNIOR UNIVERSITY, THE	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	000	2	7/1/2022	CHANGE OF GRANTEE / TRAINING INSTITUTION / AWARDING INSTITUTION	$0
														Subtotal = $2,131,927

Issue Date FY: 2021 ( Subtotal = $2,161,088 )
2021	2021	LELAND STANFORD JUNIOR UNIVERSITY, THE	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	003	2	9/10/2021	SUPPLEMENT FOR EXPANSION	$2,161,088
2021	2021	LELAND STANFORD JUNIOR UNIVERSITY, THE	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	002	2	9/8/2021	SUPPLEMENT FOR EXPANSION	-$2,161,088
2021	2021	LELAND STANFORD JUNIOR UNIVERSITY, THE	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	001	2	8/30/2021	SUPPLEMENT FOR EXPANSION	$2,161,088
2021	2018	LELAND STANFORD JUNIOR UNIVERSITY, THE	450 JANE STANFORD WAY	STANFORD	CA	94305	SANTA CLARA	USA	Trans-NIH Research Support	000	2	6/29/2021	CHANGE OF GRANTEE / TRAINING INSTITUTION / AWARDING INSTITUTION	$0
														Subtotal = $2,161,088

Issue Date FY: 2018 ( Subtotal = $646,555 )
2018	2018	SAN FRANCISCO GENERAL HOSPITAL FOUNDATION, THE	2789 25TH ST STE 2028	SAN FRANCISCO	CA	94110	SAN FRANCISCO	USA	Trans-NIH Research Support	000	1	7/3/2018	SUPPLEMENT FOR EXPANSION	$646,555
														Subtotal = $646,555

Issue Date FY: 2017 ( Subtotal = $542,001 )
2017	2017	SAN FRANCISCO GENERAL HOSPITAL FOUNDATION, THE	2789 25TH ST STE 2028	SAN FRANCISCO	CA	94110	SAN FRANCISCO	USA	Trans-NIH Research Support	000	1	7/23/2017	NEW	$542,001
														Subtotal = $542,001

Grand Total All Awards = $10,741,267

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PRIDEnet for the All of Us Research Program

Award Number: OT2OD025276

ORGANIZATION: OFFICE OF THE DIRECTOR, NIH

OPDIV: NIH

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: OTHER

PERIOD OF PERFORMANCE START DATE: 07/23/2017

PERIOD OF PERFORMANCE END DATE: 03/14/2025

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