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Exploring pathways from clinical information to effective surveillance strategies for children with Fetal Alcohol Spectrum Disorders

Award Number: NU84DD000020
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES
PERIOD OF PERFORMANCE START DATE: 09/01/2022
PERIOD OF PERFORMANCE END DATE: 08/31/2025

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Exploring pathways from clinical information to effective surveillance strategies for children with Fetal Alcohol Spectrum Disorders - Fetal Alcohol Spectrum Disorders (FASD) may be a major component of child cognitive and behavioral problems and educational deficits in the United States but no efficient mechanism exists for effective surveillance of these consequences of prenatal alcohol exposure (PAE). As a result it is difficulty to identify the prevalence of these disorders, their cost to society in general, differences among regional and social groups, if any, and response to prevention and intervention efforts. To determine feasibility of FASD surveillance using multi-institutional health care and other data sets, we have assembled a highly experience team and propose to work with the Centers for Disease Control and Prevention and other funded sites to develop the methods necessary to improve understanding of the resources available for such an effort. Using clinical information obtained in a developmental/behavioral clinic providing care to children with prenatal alcohol and other substance use, we propose to create the tools necessary to identify elements associated with the process of referral, diagnosis, and referral/treatment of individuals with FASD. Results from abstraction of clinic data can then be leveraged to provide a basis for examination of multi-institutional data sets to evaluate the extent to which these may be employed in surveillance. Concurrently, using qualitative methods, we propose to survey key informants both professionals experienced with FASD and those on the “front line” who may not be so experienced as well as families and individuals with lived experience with FASD. This aspect of the project will serve to validate the abstraction of quantitative data and evaluation of data sets. The result of these efforts should be an improved understanding of the characteristics associated with the FASD diagnoses, the extent to which data elements are present in multi-institutional data sets and factors associated with missing data. The results of this project will provide the basis for the development of more effective surveillance methods for FASD.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = $374,362 )
2024	2024	EMORY UNIVERSITY	201 DOWMAN DR NE	ATLANTA	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	7/11/2024	NON-COMPETING CONTINUATION	$374,362
2024	2023	EMORY UNIVERSITY	201 DOWMAN DR NE	ATLANTA	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	7/11/2024	NON-COMPETING CONTINUATION	$0
2024	2023	EMORY UNIVERSITY	201 DOWMAN DR	ATLANTA	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	2	10/5/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2022	EMORY UNIVERSITY	201 DOWMAN DR	ATLANTA	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	2	10/5/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2022	EMORY UNIVERSITY	201 DOWMAN DR NE	ATLANTA	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	7/11/2024	NON-COMPETING CONTINUATION	$0
														Subtotal = $374,362

Issue Date FY: 2023 ( Subtotal = $385,496 )
2023	2023	EMORY UNIVERSITY	201 DOWMAN DR	ATLANTA	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	6/13/2023	NON-COMPETING CONTINUATION	$385,496
2023	2022	EMORY UNIVERSITY	201 DOWMAN DR	ATLANTA	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	6/13/2023	NON-COMPETING CONTINUATION	$0
2023	2022	EMORY UNIVERSITY	1599 Clifton Rd NE, #4	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	1	10/13/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $385,496

Issue Date FY: 2022 ( Subtotal = $403,992 )
2022	2022	Emory University	1599 Clifton Road NE, 4th Floor	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	1	8/10/2022	NEW	$403,992
														Subtotal = $403,992

Grand Total All Awards = $1,163,850

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Exploring pathways from clinical information to effective surveillance strategies for children with Fetal Alcohol Spectrum Disorders

Award Number: NU84DD000020

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

PERIOD OF PERFORMANCE START DATE: 09/01/2022

PERIOD OF PERFORMANCE END DATE: 08/31/2025

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