The Pennsylvania (PA) Department of Health has been participating in the Centers for Disease Control and Prevention (CDC) Medical Monitoring Project (MMP) since 2004. Data collected from Pennsylvania HIV surveillance reporting and data from other sites using HIV surveillance are used to find individuals to be sampled who may or may not be in care. Individuals who participate in answering the CDC questionnaire and provide information about their HIV status are given a token of appreciation. We also request permission to obtain their medical record so it can be abstracted. All of the data which is collected is sent to CDC to be evaluated along with the other MMP sites. The information collected helps to determine where CDC funding should go for services but also provides the sampled persons a chance to help get care and services to those who might need it. Some individuals may also elect to participate in a local survey for PA in order to obtain more information that may not be asked in the current CDC questionnaire.
Interviewers can help individuals who don’t know where to get services in their area. Some individuals may want to switch to another provider for care or may not be in care. MMP staff may also assist individuals to contact providers or a nurse in a state health center or Local Morbidity Reporting Office (LMRO) to help get the person into care. Individuals not in care will be referred to Data to Care.
Medical records will be abstracted for the past two years to verify care and data is collected on those interviewed. Data without identifying personal information is collected and sent to the CDC. Interview information will be sent using PGP encryption using an electronic portal set up by CDC. The medical records are sent to OpenClinica and then sent to the CDC medical workgroup.
All data is collected, analyzed, weighted and sent back to each MMP site. PA receives data from the entire state including Philadelphia which is also a separate MMP site. The CDC uses the data from PA MMP, along with other MMP sites for various studies and papers. PA MMP has been using the CDC data as fact sheets to show providers demographics, along with behaviors, practices, along with met and unmet needs for services. Papers and analysis generated will be shared with the HIV Planning Group (HPG), providers, Provider Advisory Board (PAB) and Community Advisory Board (CAB) members.