The Indiana Medical Monitoring Project (MMP) is a supplemental HIV/AIDS surveillance system that will obtain data from a probability sample of HIV-infected persons receiving and non receiving care in Indiana. Data obtained from the project will be used to describe the clinical status of these persons; describe the prevalence and co-morbidities related to HIV disease; describe HIV care and support services received and the quality of such services; determine prevalence of ongoing risk behaviors and access to, and use of prevention services among persons living with HIV; and identify met and unmet needs for HIV care and prevention services to inform prevention and care planning groups, health care providers, and other stakeholders.
The objective of the Indiana MMP will be to: assess the impact of treatments for HIV; determine access to and utilization of HIV–related medical care and its relationship to HIV-related morbidity and mortality; measure ongoing HIV transmission risk and care seeking behaviors; assess the quality of life for persons with HIV infection; evaluate the acceptance and adherence to prescribed antiretroviral therapy; describe changing trends in the epidemic and allocate resources accordingly; provide information that can be used to evaluate HIV surveillance, prevention, and services activities and to direct future resources for HIV-infected persons.
Indiana will collect a list of patients seen during a Population Definition Period defined by CDC from the enhanced HIV/AIDS Reporting System (eHARS) and develop a patient sampling frame. CDC will randomly select 400 patients from the provided sampling frame to participate in MMP. Indiana will use a standardized interview and record abstraction instrument developed by the Centers for Disease Control (CDC). The interview instrument will be administered to all consenting participants. Indiana’s communicable disease laws allows for the abstraction of HIV positive individuals without their consent, therefore, all 400 sampled participants medical records will be abstracted. All collected data will be de-identified, encrypted and submitted to CDC for analysis using tracking workbooks developed by CDC. Indiana will analyze data and compare it to CDC analysis prior to data release.