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Strengthening Birth Defects Surveillance in Texas: Innovative Data Linkages, Applied Epidemiology, and Enhanced Prevention and Outreach

Award Number: NU50DD000102
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES

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PROJECT ABSTRACT SUMMARY The Birth Defects and Epidemiology Surveillance Branch at the Department of State Health Services houses the Texas Birth Defects Registry (TBDR). The TBDR is one of the largest active birth defect surveillance programs in the world, has contributed to over 350 peer-reviewed publications, and meets or exceeds the National Birth Defects Prevention Network’s criteria for essential registry performance on all indicators of quality. The proposed activities and strategies outlined in the narrative are informed by the lessons learned in responding to past threats (e.g., Zika), and ongoing threats (e.g., COVID-19) where our surveillance specialists rapidly abstracted 735 COVID-19 hospitalization discharges in Texas during August, 2020. This grant, if awarded to Texas, will support the TBDR’s ability to move forward in the identified areas. First, our surveillance capacity will be strengthened by a new data source, Texas Medicaid data, and internal surveillance capacity building activities. Together, these activities will determine to what extent our active surveillance of birth defects is under-ascertaining cases across major birth defects, as well as the individual completeness of existing TBDR cases e.g., missing procedures or prenatal diagnoses. Funding will also enable the TBDR to assess our readiness to exchange data with electronic health systems (EHRs). Second, we will conduct activities to improve our surveillance data quality by collaborating with the CDC to develop, pilot, and evaluate data quality indicators; developing a routine to monitor data quality using indicators; and assessing yearly practices and events impacting data quality. Third, collaboration is a cornerstone of public health; therefore, we propose strategies that will lead to an increased understanding of birth defects epidemiology through multi-state collaborations; and, an evaluation of mortality and survival with a cost-effectiveness assessment of the National Death Index for surveillance of vital status. Fourth, we will develop a protocol for contacting families of infants and children with birth defects to first identify facilitators and barriers to tracking children prospectively to support the primary and secondary prevention of birth defects. Moreover, we propose primary and secondary prevention strategies for neural tube defect recurrence prevention and congenital syphilis prevention, as well as strategies using surveillance data to identify at-risk populations for prevention efforts. Finally, we expand our activities related to the referral of affected individuals to medical and early intervention services. The proposed activities are expected to result in the following project period outcomes: (1) Strengthened surveillance of birth defects; (2) Improved quality of birth defects surveillance data; (3) Increased contribution of multi-state data in scientific understanding of birth defects epidemiology; (4) Increased knowledge of the prevention of birth defects; (5) Increased ability to rapidly respond to emerging threats to mothers and babies; and, (6) Increased ability to support the primary and secondary prevention of birth defects.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = $300,000 )
2024	2024	DEPARTMENT OF STATE HEALTH SERVICES	1100 W 49TH ST	AUSTIN	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	3/31/2024	NON-COMPETING CONTINUATION	$300,000
2024	2023	DEPARTMENT OF STATE HEALTH SERVICES	1100 W 49TH ST	AUSTIN	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	3/31/2024	NON-COMPETING CONTINUATION	$0
2024	2022	DEPARTMENT OF STATE HEALTH SERVICES	1100 W 49TH ST	AUSTIN	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	3/31/2024	NON-COMPETING CONTINUATION	$0
2024	2021	DEPARTMENT OF STATE HEALTH SERVICES	1100 W 49TH ST	AUSTIN	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	3/31/2024	NON-COMPETING CONTINUATION	$0
														Subtotal = $300,000

Issue Date FY: 2023 ( Subtotal = $300,000 )
2023	2023	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	3/23/2023	NON-COMPETING CONTINUATION	$300,000
2023	2023	STATE HEALTH SERVICES, TEXAS DEPARTMENT OF	1100 W 49TH ST	AUSTIN	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	6/29/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2022	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	3/23/2023	NON-COMPETING CONTINUATION	$0
2023	2022	STATE HEALTH SERVICES, TEXAS DEPARTMENT OF	1100 W 49TH ST	AUSTIN	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	6/29/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2021	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	3/23/2023	NON-COMPETING CONTINUATION	$0
2023	2021	STATE HEALTH SERVICES, TEXAS DEPARTMENT OF	1100 W 49TH ST	AUSTIN	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	6/29/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $300,000

Issue Date FY: 2022 ( Subtotal = $300,000 )
2022	2022	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	4/20/2022	NON-COMPETING CONTINUATION	$300,000
2022	2021	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	4/20/2022	NON-COMPETING CONTINUATION	$0
														Subtotal = $300,000

Issue Date FY: 2021 ( Subtotal = $300,000 )
2021	2021	State Health Services, Texas Department of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	1	4/26/2021	NEW	$300,000
2021	2021	State Health Services, Texas Department Of	1100 W 49th St	Austin	TX	78756	TRAVIS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	1	6/8/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $300,000

Grand Total All Awards = $1,200,000

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Strengthening Birth Defects Surveillance in Texas: Innovative Data Linkages, Applied Epidemiology, and Enhanced Prevention and Outreach

Award Number: NU50DD000102

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

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