The SC Birth Defects Program is an active birth defects case finding program which is striving to improve data completeness for the purposes of robust birth defects surveillance and referrals. A 2020 data utilization pilot project allowed SCBDP to estimate missed cases in outpatient and other settings and helped the program to determine how additional data sources would improve overall surveillance efforts.
The SCBDP will utilize its legal authority to enhance surveillance capacity and to adopt novel methods for data acquisition for the benefit of impacted families and the birth defects surveillance community at large. The opportunity to expand through "Advancing Population-Based Surveillance" would allow SCBDP to: 1) Conduct active surveillance in pediatric hospitals and outpatient settings within and outside of hospital networks; 2) Abstract additional birth defects; 3) Ascertain birth defects in border regions found through Medicaid data; 4) Receive and utilize genetic testing data from all SC laboratories; 5) Use V2 messaging for receipt of genetic information; 6) Expand referrals to BabyNet for newly identified cases found in pediatric hospitals and outpatient settings, and begin referrals to Early Hearing Detection and Intervention (EHDI) and to Postpartum Newborn Home Visits (PPNBHV); and, 6) Conduct surveillance and detection for all Critical Congenital Heart Defects identified during the reporting period.
Through this opportunity, SCBDP will implement novel and evidence-based surveillance, prevention, and referral efforts for the benefit of birth defects programs across the country and families impacted by birth defects.