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Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults, Component A

Award Number: NU50DD000057
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES
PERIOD OF PERFORMANCE START DATE: 09/30/2019
PERIOD OF PERFORMANCE END DATE: 09/29/2024

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Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults, Component A - Improved treatment of congenital heart defects (CHD) has increased survival; however, little data exist on healthcare utilization, comorbidities, long-term health and non-health outcomes and mortality to inform development of effective secondary prevention strategies. Building on existing infrastructure using individual encounter level data for 2008-2017, we propose to improve understanding of healthcare outcomes over time for patients with CHD; racial/ethnic and socioeconomic patterns in healthcare usage, and their impact on outcomes over time; and age-specific mortality. Through this project, we will gain a greater understanding of the strengths and limitations of integrated CHD surveillance, increase awareness among stakeholders, and improve ability to calculate life expectancies. We propose to: (1) gain a greater understanding of the strengths and limitations of databases used for CHDs surveillance; (2) improve understanding of age-specific mortality, healthcare utilization, comorbidities, survival and other outcomes; (3) improve understanding of racial/ethnic and socioeconomic patterns in healthcare usage, and their impact on long-term outcomes; and (5) increase CHDs awareness among the public and stakeholders. Our source population is the metro-Atlanta 5-county area (3.7 million individuals in 2017, 41 percent black). Regional and community partners enhance our surveillance system, guide education efforts, and ensure data quality and consistency. Through our previous work, we have already demonstrated success in conducting CHD surveillance in the proposed region, and have developed processes to assess data quality and performance measures applicable to the proposed project.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2023 ( Subtotal = $495,000 )
2023	2023	Emory University	201 Dowman Dr	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$495,000
2023	2022	Emory University	201 Dowman Dr	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$0
2023	2021	Emory University	201 Dowman Dr	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$0
2023	2020	Emory University	201 Dowman Dr	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$0
														Subtotal = $495,000

Issue Date FY: 2022 ( Subtotal = $495,000 )
2022	2022	EMORY UNIVERSITY	1599 Clifton Road NE, 4th Floor	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	5/26/2022	NON-COMPETING CONTINUATION	$495,000
2022	2021	EMORY UNIVERSITY	1599 Clifton Road NE, 4th Floor	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	5/26/2022	NON-COMPETING CONTINUATION	$0
2022	2021	EMORY UNIVERSITY	1599 Clifton Road NE, 4th Floor	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	5/4/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2020	EMORY UNIVERSITY	1599 Clifton Road NE, 4th Floor	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	5/4/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2020	EMORY UNIVERSITY	1599 Clifton Road NE, 4th Floor	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	5/26/2022	NON-COMPETING CONTINUATION	$0
														Subtotal = $495,000

Issue Date FY: 2021 ( Subtotal = $495,000 )
2021	2021	Emory University	201 Dowman Dr	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	6/11/2021	NON-COMPETING CONTINUATION	$495,000
2021	2020	Emory University	201 Dowman Dr	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	6/11/2021	NON-COMPETING CONTINUATION	$0
														Subtotal = $495,000

Issue Date FY: 2020 ( Subtotal = $492,977 )
2020	2020	Emory University	201 Dowman Dr	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	2	7/9/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2020	2020	Emory University	201 Dowman Dr	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	7/1/2020	NON-COMPETING CONTINUATION	$492,977
2020	2019	Emory University	1599 Clifton Rd.	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	1	12/3/2019	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $492,977

Issue Date FY: 2019 ( Subtotal = $425,000 )
2019	2019	Emory University	1599 Clifton Rd.	Atlanta	GA	30322	DEKALB	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	1	7/25/2019	NEW	$425,000
														Subtotal = $425,000

Grand Total All Awards = $2,402,977

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Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults, Component A

Award Number: NU50DD000057

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

PERIOD OF PERFORMANCE START DATE: 09/30/2019

PERIOD OF PERFORMANCE END DATE: 09/29/2024

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