Thursday, April 3, 2025
4/3/2025
Congenital Heart Defects Surveillance Across Time and Regions CHD START - The purpose of the proposed project is to further develop population-based surveillance of 1-45-year-olds with congenital heart defects (CHDs) living in New York State (NYS) to examine descriptive epidemiology, survival, healthcare utilization, co-morbidities and other outcomes over time. NYS Department of Health (NYSDOH) plans to build on its existing CHD surveillance framework comprised of records from clinics, hospital inpatient and outpatient data, Medicaid data, Birth Defects Registry data and Vital Records by expanding the surveillance region to all of NYS, by adding new data sources (New York City Vital Records, National Death Index) and by geocoding residential and facility address information to link to new data sources (U.S. Census, American Community Survey, Rural-Urban Commuting Area Codes), to characterize geographic proximity to care facilities, and to characterize case movement across NYS over the 2008-2017 time-period. NYSDOH expects to achieve the following outcomes by the end of the project period: 1. Establishment/enhancement of diverse partnership collaborations which will result in comprehensive identification of cases and healthcare encounters to fulfill program goals 2. An improved knowledge of the characteristics of individuals identified from multiple high-quality data sources 3. An improved understanding of age-specific mortality 4. An improved understanding of healthcare utilization, comorbidities and other outcomes 5. An improved understanding of racial/ethnic and socioeconomic patterns in healthcare use and long-term outcomes 6. An improved understanding of the strengths and limitations of data sources for providing information about individuals with CHDs 7. An increased awareness among health service providers, patients, parents and public of national CHD issues 8. Creation and dissemination of improved information to the public, patients, families, and policy makers on healthcare utilization, comorbidities and outcomes of individuals
HHS’ Tracking Accountability in Government Grants System (TAGGS) website provides access to detailed descriptions of grants, loans, aggregated direct payments and other types of financial assistance awarded by the HHS Operating Divisions (OPDIVs) and the Office of the Secretary Staff Divisions (STAFFDIVs).