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Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults

Award Number: NU50DD000052
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES
PERIOD OF PERFORMANCE START DATE: 09/30/2019
PERIOD OF PERFORMANCE END DATE: 09/29/2025

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Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults - The South Carolina Birth Defects Program’s (SCBDP) planned congenital heart defect (CHD) surveillance work will span the state of South Carolina for years 2008-2017 and will build upon a cohort of 5,500 cases of CHD already identified by the program from this time period. This application strategically coordinates data acquisition from key active and passive data sources across SC and utilizes multiple sources of data expertise to more fully describe economic impact, healthcare utilization, morbidity, mortality, and disparities among people impacted by CHD. This coordinated effort and commitment from key partners to collaborate will bring public-provider awareness of the burden of CHD, produce critical CHD prevention messaging, identify new ways to support families impacted by CHD, and contribute to the body of knowledge surrounding CHD. The program has received letters of support and commitments for collaboration from the state Vital Statistics Office, the Revenue and Fiscal Affairs Office, the Medical University of South Carolina, Prisma Health in the Upstate (formerly Greenville Health System), Prisma Health in the Midlands (formerly Palmetto Health), and Greenwood Genetic Center. Additionally, South Carolina’s robust surveillance law (Title 44-44-10) allows the SCBDP to conduct surveillance of birth defects through any state medical institution and among any age group. Partnership with the Greenwood Genetic Center will position the program to enhance a population-based dataset on CHD with additional information on genetic comorbidities. This application will allow the SCBDP to achieve grant outcomes through strategic partnerships and enhancements of an existing surveillance system. The following outcomes will be achieved through this grant opportunity: 1. Surveillance infrastructure is created for enhanced CHD surveillance in SC 2. Diverse partnership collaborations are established which will result in comprehensive identification of cases and healthcare encounters to fulfill program goals 3. Improved knowledge on the characteristics of individuals identified from multiple high-quality data sources 4. Improved understanding of age-specific mortality 5. Improved understanding of healthcare utilization, comorbidities and other outcomes 6. Improved understanding of racial/ethnic and socioeconomic patterns in healthcare use and long-term outcomes 7. Improved understanding of the strengths and limitations of data sources for providing information about individuals with CHDs 8. Increased awareness among stakeholders of nationwide CHD issues


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = $0 )
2024	2023	SOUTH CAROLINA DEPARTMENT OF HEALTH & ENVIRONMENTAL CONTROL	2600 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	5	11/3/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2023	SOUTH CAROLINA DEPARTMENT OF PUBLIC HEALTH	2100 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	5	9/18/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2022	SOUTH CAROLINA DEPARTMENT OF PUBLIC HEALTH	2100 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	5	9/18/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2022	SOUTH CAROLINA DEPARTMENT OF HEALTH & ENVIRONMENTAL CONTROL	2600 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	5	11/3/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2021	SOUTH CAROLINA DEPARTMENT OF HEALTH & ENVIRONMENTAL CONTROL	2600 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	5	11/3/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2021	SOUTH CAROLINA DEPARTMENT OF PUBLIC HEALTH	2100 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	5	9/18/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2020	SOUTH CAROLINA DEPARTMENT OF PUBLIC HEALTH	2100 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	5	9/18/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2020	SOUTH CAROLINA DEPARTMENT OF HEALTH & ENVIRONMENTAL CONTROL	2600 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	5	11/3/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $0

Issue Date FY: 2023 ( Subtotal = $400,000 )
2023	2023	SOUTH CAROLINA DEPARTMENT OF HEALTH & ENVIRONMENTAL CONTROL	2600 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$400,000
2023	2022	SOUTH CAROLINA DEPARTMENT OF HEALTH & ENVIRONMENTAL CONTROL	2600 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$0
2023	2021	SOUTH CAROLINA DEPARTMENT OF HEALTH & ENVIRONMENTAL CONTROL	2600 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$0
2023	2020	SOUTH CAROLINA DEPARTMENT OF HEALTH & ENVIRONMENTAL CONTROL	2600 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$0
														Subtotal = $400,000

Issue Date FY: 2022 ( Subtotal = $400,000 )
2022	2022	Health and Environmental Control, South Carolina Department of	2600 Bull St	Columbia	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	5/25/2022	NON-COMPETING CONTINUATION	$400,000
2022	2021	Health and Environmental Control, South Carolina Department of	2600 Bull St	Columbia	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	5/25/2022	NON-COMPETING CONTINUATION	$0
2022	2020	Health and Environmental Control, South Carolina Department of	2600 Bull St	Columbia	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	5/25/2022	NON-COMPETING CONTINUATION	$0
														Subtotal = $400,000

Issue Date FY: 2021 ( Subtotal = $400,000 )
2021	2021	Health and Environmental Control, South Carolina Department of	2600 Bull St	Columbia	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	6/11/2021	NON-COMPETING CONTINUATION	$400,000
2021	2020	Health and Environmental Control, South Carolina Department of	2600 Bull St	Columbia	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	6/11/2021	NON-COMPETING CONTINUATION	$0
														Subtotal = $400,000

Issue Date FY: 2020 ( Subtotal = $400,000 )
2020	2020	Health and Environmental Control, South Carolina Department of	2600 Bull St	Columbia	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	7/1/2020	NON-COMPETING CONTINUATION	$400,000
2020	2020	Health And Environmental Control, South Carolina Department Of	2600 Bull St	Columbia	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	2	7/17/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2020	2019	Health And Environmental Control, South Carolina Department Of	2600 Bull St	Columbia	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	03	1	7/9/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2020	2019	HEALTH AND ENVIRONMENTAL CONTROL, SOUTH CAROLINA DEPARTMENT OF	2600 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	1	10/1/2019	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $400,000

Issue Date FY: 2019 ( Subtotal = $315,000 )
2019	2019	HEALTH AND ENVIRONMENTAL CONTROL, SOUTH CAROLINA DEPARTMENT OF	2600 Bull St	Columbia	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	1	7/19/2019	NEW	$315,000
2019	2019	HEALTH AND ENVIRONMENTAL CONTROL, SOUTH CAROLINA DEPARTMENT OF	2600 BULL ST	COLUMBIA	SC	29201	RICHLAND	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	1	9/27/2019	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $315,000

Grand Total All Awards = $1,915,000

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Surveillance of Congenital Heart Defects Among Children, Adolescents, and Adults

Award Number: NU50DD000052

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

PERIOD OF PERFORMANCE START DATE: 09/30/2019

PERIOD OF PERFORMANCE END DATE: 09/29/2025

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