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San Francisco Sudden Unexpected Infant Death (SUID) and Sudden Death in the Young (SDY) Case Registry: SUID Core Component 2 and SDY Optional Component 2

Award Number: NU38DP000019
ORGANIZATION: NATIONAL CENTER FOR CHRONIC DISEASE PREVENTION & HEALTH PROMOTION
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES

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Sudden Death in the Young (SDY) is a significant health problem with a devastating impact on families, care providers, and the community. Lack of accurate data on SDY incidence, epidemiology, underlying pathology, and risk factors, especially in diverse populations heretofore underrepresented, substantially hamper the design and implementation of screening and prevention of this lethal condition in all forms: sudden cardiac death in the young (SCDY) Sudden Unexplained Death in Epilepsy (SUDEP), and Sudden Infant Death Syndrome (SIDS). Results from the PI’s NHLBI-funded, ongoing San Francisco POST SCD (POstmortem Systematic InvesTigation of Sudden Cardiac Death) Study, which has already established a highly successful collaboration with the San Francisco Medical Examiner to fully investigate and autopsy every consecutive adult SCD since 2011, confirm the differential incidence and risk of adult SCD in minority populations, thus highlighting the critical need for data in these growing segments of the U.S. population. Further, PI’s expertise and unique contributions to the SUID and SDY Case registry thus far include to broad insights into potential SUID/SDYtrends in San Francisco with sudden deaths adjudicated due to occult renal failure and the creation of a UCSF-based resources for the entire CDC SUID/SDY Registry participants for (1) the detailed postmortem review of pacemaker and defibrillator interrogations and (2) cardiac pathology review We propose the extension of these activities and collaborations already in place to continue to fully investigate all incident SDY in San Francisco with complete capture of data, including autopsy/pathology reports, death certificates, medical records, paramedic runsheets, death scene and police investigation, biospecimen collection, and the timely review of every SDY by the Child Death Review (CDR) Team and Clinical Advanced Review Team. Through San Francisco’s current participation in the SUID and SDY Registry, our team has maximized resources to develop a comprehensive, prospective, population-based surveillance system for SDY in a prototypic diverse community that presages near-term overall national demographic shifts. Through our findings, we have begun to lay the groundwork for informing future practices and policies for screening and prevention of SDY, and through our participation in the local CDRT meetings, have been able to improve policies and practice of death investigations, CDR processes, and systems serving families. Our team brings a sophisticated and thorough advanced review of cases, which has led to a discovery of renal failure as a potential unrecognized cause of SDY. Locally, we have reached out to partners and helped to better organize the CDR team, which was previously experiencing disorganization from changes in leadership. Broadly, our advanced review has served as an exemplar for other sites participating in the registry, and have made a second opinion service available for consultations on cardiac pathology and evaluation of cardiac devices. We have also assisted with development of the consent process by providing insight into our methods for consenting next of kin in our adult POST SCD study. Due to our experience with county-wide surveillance of adult sudden cardiac deaths, the PI and team have also shared epidemiologic insights including the importance of capturing survivor data, and additional details of deaths initially deemed accidental overdoses. As a clinical and research institution with a unique perspective on SDY/SUID cases, we expect to continue to contribute our insights towards the nationwide registry beyond the scope of our local cases.


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = -$122 )
2024	2022	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94103	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	01	5	9/26/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	-$122
2024	2021	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94103	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	01	5	9/26/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2020	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94103	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	01	5	9/26/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2019	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94103	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	01	5	9/26/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2018	REGENTS OF THE UNIVERSITY OF CALIFORNIA, SAN FRANCISCO, THE	1855 FOLSOM ST STE 425	SAN FRANCISCO	CA	94103	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	01	5	9/26/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = -$122

Issue Date FY: 2022 ( Subtotal = $42,744 )
2022	2022	Regents of the University of California, San Francisco, The	1855 Folsom St Ste 425	San Francisco	CA	94143	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	00	5	6/29/2022	NON-COMPETING CONTINUATION	$42,744
2022	2021	Regents of the University of California, San Francisco, The	1855 Folsom St Ste 425	San Francisco	CA	94143	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	00	5	6/29/2022	NON-COMPETING CONTINUATION	$0
														Subtotal = $42,744

Issue Date FY: 2021 ( Subtotal = $46,330 )
2021	2021	Regents Of The University Of California, San Francisco, The	1855 Folsom St Ste 425	San Francisco	CA	94143	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	00	4	7/27/2021	NON-COMPETING CONTINUATION	$46,330
2021	2020	Regents Of The University Of California, San Francisco, The	1855 Folsom St Ste 425	San Francisco	CA	94143	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	02	3	9/14/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2020	Regents Of The University Of California, San Francisco, The	1855 Folsom St Ste 425	San Francisco	CA	94143	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	01	3	11/5/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $46,330

Issue Date FY: 2020 ( Subtotal = $46,333 )
2020	2020	Regents Of The University Of California, San Francisco, The	1855 Folsom St Ste 425	San Francisco	CA	94143	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	00	3	7/20/2020	NON-COMPETING CONTINUATION	$46,333
2020	2019	Regents Of The University Of California, San Francisco, The	1855 Folsom St Ste 425	San Francisco	CA	94143	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	01	2	3/3/2020	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $46,333

Issue Date FY: 2019 ( Subtotal = $42,983 )
2019	2019	Regents Of The University Of California, San Francisco, The	1855 Folsom St Ste 425	San Francisco	CA	94143	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	00	2	7/30/2019	NON-COMPETING CONTINUATION	$42,983
2019	2018	Regents Of The University Of California, San Francisco, The	1855 Folsom St Ste 425	San Francisco	CA	94143	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	02	1	11/8/2018	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $42,983

Issue Date FY: 2018 ( Subtotal = $42,000 )
2018	2018	Regents Of The University Of California, San Francisco, The	1855 Folsom St Ste 425	San Francisco	CA	94143	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	01	1	8/10/2018	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2018	2018	Regents Of The University Of California, San Francisco, The	1855 Folsom St Ste 425	San Francisco	CA	94143	SAN FRANCISCO	USA	Cooperative Agreements to Support State-Based Safe Motherhood and Infant Health Initiative Programs	00	1	8/2/2018	NEW	$42,000
														Subtotal = $42,000

Grand Total All Awards = $220,268

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San Francisco Sudden Unexpected Infant Death (SUID) and Sudden Death in the Young (SDY) Case Registry: SUID Core Component 2 and SDY Optional Component 2

Award Number: NU38DP000019

ORGANIZATION: NATIONAL CENTER FOR CHRONIC DISEASE PREVENTION & HEALTH PROMOTION

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

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