The Delaware Division of Public Health (DPH) is re-applying for the Core Component of State SUID surveillance of infants and the optional expanded component statewide SDY surveillance in the amount of $55,000.00 per year. The SDY Registry is a resource designed to increase understanding of the causes and risk factors for sudden death in the young and is an expansion of the Center for Disease Control and Prevention’s (CDC) Sudden Unexpected Infant Death Case Registry. The SDY Registry combines data from Delaware’s Child Death Review Commission (CDRC), information from Division of Forensic Sciences- the Office of the Medical Examiner (DFS-ME), death and birth certificates, law enforcement, social service agencies and the child’s or mother and /infant’s medical records.
In collaboration with the CDRC, the grant will continue a comprehensive, population-based information source for sudden unexpected death in youths up to age 17 years. Funding will be utilized to provide on-going training for child death scene investigation for all first responders within the investigatory team, DNA sampling by the DFS-ME for certain SDY cases, contractual medical record abstraction, support for the child death panel reviews and a clinical review with the expertise of a pediatric cardiologist, pediatric neurologist (specializing in epilepsy) and a forensic pathologist. In addition, continued funding will enable prevention initiatives to be developed based on the results of the population-based data as conducted by a DPH epidemiologist. DPH will collaborate with CDRC, DFS-ME and other external partners to review all SDY cases in the state. The medical abstractor will be responsible for gathering data from the above listed sources and creating entries in the SUID/SDY registry module of the National Center for Fatality Review and Prevention (NCFRP) case reporting tool. DPH, CDRC, and the medical abstractor in partnership with the DPH epidemiologist will perform quality assurance activates and will submit data to the CDC as required.
The data gathered from this registry will be utilized at the state and national levels to improve understanding of the infant/child death scene investigation and autopsies (including bio specimen collection on a subset of cases meeting pre-specified criteria), as well as provide insight in how to improve these practices. This surveillance data will also be utilized for program planning and evaluation at the State level, and will help to improve public health outcomes in the maternal and child population in accordance with Title V performance measures and Healthy People 2020.
The fundamental goals of this cooperative agreement are to:
• Increase prevention education to the substance exposed families through the use of evidence-based home-visiting programs and the Division of Family Services.
• Enhance the collaboration between the CDRC and the Division of Family Services. This will include an online webinar to educate staff on infant safe sleeping.
• Improve the collection of all bio specimens from identified SDY registry cases.
• Further analysis of the infant safe sleeping deaths (de-identified data) from 2015 to present in coordination with the Division of Public Health and a designated epidemiologist.
• Fund staffing for the Chronic Health Conditions for School Age children and a CDRC liaison to the DFS-ME.
• On-going education on child death scene investigation for the first responders in Delaware.