Documenting Outcomes Associated with Persistent Tic Disorders (including Tourette Syndrome) in Children, Adolescents, and Young Adults through Surveillance - This project addresses critical gaps in understanding the public health impact of Persistent Tic Disorders (PTD) and Tourette Syndrome (TS) among children, adolescents, and young adults. Through clinic-based surveillance targeting priority outcomes such as costs, co-occurring conditions, suicidality, and healthcare transitions, the project aims to inform future secondary prevention efforts, targeted interventions, and reduce health inequities. Utilizing standardized surveys and clinical/census data linkage, our multidisciplinary team, in collaboration with CDC programs and other partners, seeks to develop, test, implement, evaluate, and disseminate surveillance methods and findings on priority outcomes. By prioritizing data linkage and recruitment from diverse cohorts, the project aims to enhance our understanding of health disparities and their relationships with other outcomes. Our team at USF, comprising tic/Tourette subject matter experts, an epidemiologist specializing in surveillance and health disparities, and a biostatistical core (with expertise in data management, linkage, extraction, analysis, sharing and presentation), is uniquely positioned to design, implement, evaluate and disseminate comprehensive surveillance strategies collaboratively with the CDC and other recipients.
