Tuesday, August 19, 2025 8/19/2025

The Tourette Association of America offers evidence-based informational programs and develops/disseminates resources on recognition, diagnosis, and management of TS.

Award Number: NU38DD000001
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES
PERIOD OF PERFORMANCE START DATE: 09/01/2019
PERIOD OF PERFORMANCE END DATE: 08/31/2024

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The Tourette Association of America offers evidence-based informational programs and develops/disseminates resources on recognition, diagnosis, and management of TS. - Tourette Syndrome (TS) is a complex neurological disorder characterized by motor and vocal tics that affects 1/160 school-aged children. The Centers for Disease Control and Prevention (CDC) estimates that 50% of children go undiagnosed. In addition, 86% of children diagnosed with TS have also been diagnosed with at least one additional mental, behavioral, or developmental condition such as attention-deficit/hyperactivity disorder (ADHD), obsessive-compulsive disorder (OCD), behavioral or conduct problems, anxiety problems, depression, autism spectrum disorder, learning disability, speech or language problems, or intellectual disability. In a survey conducted by the Tourette Association of America (TAA) in 2018, 51% of adults and 32% of children (as reported by parents/caregivers) said they had considered suicide or participated in self-harm. Further, 36% of adults and 42% of children felt the biggest challenge in managing TS was dealing with the co-occurring conditions. There are many barriers that exist for individuals with TS and their families in seeking quality medical care and educational support. Thus, it is essential to increase awareness and understanding among parents, healthcare providers, and school-based professionals as to how TS and related co-occurring conditions can affect all areas of life. Moreover, increased dissemination efforts of evidence-based information about TS, associated conditions and burdens, and available treatments will help bridge the gap in barriers to care. The national Tourette Association of America is currently in its fifteenth year of partnership with the CDC as a National Public Health Practice and Resource Center for Children with Tourette Syndrome, and is applying for continued partnership and support under Category B: Implementing Evidence-Based Health Promotion Programs for Children with TS. Founded in 1972 in Bayside, New York, the TAA is dedicated to making life better for those affected by Tourette Syndrome and Tic Disorders. As the premier nationwide organization serving this community, the Association works to raise awareness, fund research, and provide on-going support. Through this partnership, the TAA will continue to address the multifaceted issues and burdens by providing evidence-based information to promote the health and well-being of children with TS, as well as to enhance the professional education and outreach programs that were developed and implemented during the previous fifteen years of the cooperative agreement. The TAA proposes to provide several activities that address the following key strategies: Provide Information/Consultation and Referral Programs (ICRP) as a channel to respond to questions and provide information; develop and disseminate targeted health communication programs and materials; and develop and deliver health education programs to achieve the project outcomes. The TAA recognizes the importance of collaborating with leading organizations both internal and external to the CDC in order to magnify the program’s efficacy and expand reach. Additionally, the TAA proposes to enhance technological capabilities for improved access to available resources. The TAA will use these approaches to reach the target population, which include individuals with TS, families and caregivers, medical, education, and allied professionals, and the general public. These efforts will include and expand to minority and underserved members of these populations, which include but is not limited to non-English speakers, communities in rural areas, and those with limited health literacy. The primary outcome of the program is the promotion of health and well-being of children with TS. Through the partnership, the TAA seeks to achieve increased access and awareness to available support services and treatments for TS among the community, public, healthcare, and educational professionals; increased knowledge about TS among individuals receiving information or educational mate


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2024 ( Subtotal = $0 )
2024	2023	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	5	10/10/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2023	Tourette Association of America Inc.	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	03	5	7/29/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2022	Tourette Association of America Inc.	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	03	5	7/29/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2022	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	5	10/10/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2021	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	5	10/10/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2021	Tourette Association of America Inc.	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	03	5	7/29/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2020	Tourette Association of America Inc.	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	03	5	7/29/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2024	2020	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	5	10/10/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $0

Issue Date FY: 2023 ( Subtotal = $1,099,752 )
2023	2023	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	5	7/30/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$199,752
2023	2023	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$900,000
2023	2022	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	5	7/30/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2022	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$0
2023	2021	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	5	7/30/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2021	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$0
2023	2020	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	5	7/30/2023	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2023	2020	TOURETTE SYNDROME ASSOCIATION	4240 BELL BLVD	BAYSIDE	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	5	6/11/2023	NON-COMPETING CONTINUATION	$0
														Subtotal = $1,099,752

Issue Date FY: 2022 ( Subtotal = $900,000 )
2022	2022	TOURETTE ASSOCIATION OF AMERICA INC.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	4	9/20/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2022	Tourette Association of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	6/6/2022	NON-COMPETING CONTINUATION	$900,000
2022	2021	Tourette Association of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	6/6/2022	NON-COMPETING CONTINUATION	$0
2022	2021	TOURETTE ASSOCIATION OF AMERICA INC.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	4	9/20/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2021	Tourette Association of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	5/3/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2020	Tourette Association of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	4	6/6/2022	NON-COMPETING CONTINUATION	$0
2022	2020	TOURETTE ASSOCIATION OF AMERICA INC.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	4	9/20/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2022	2020	Tourette Association of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	3	5/3/2022	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $900,000

Issue Date FY: 2021 ( Subtotal = $900,000 )
2021	2021	Tourette Association of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	6/11/2021	NON-COMPETING CONTINUATION	$900,000
2021	2020	Tourette Association Of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	02	2	8/13/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2020	Tourette Association Of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	2	8/3/2021	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
2021	2020	Tourette Association of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	3	6/11/2021	NON-COMPETING CONTINUATION	$0
														Subtotal = $900,000

Issue Date FY: 2020 ( Subtotal = $900,000 )
2020	2020	Tourette Association of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	6/19/2020	NON-COMPETING CONTINUATION	$900,000
2020	2019	Tourette Association Of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	1	12/16/2019	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $900,000

Issue Date FY: 2019 ( Subtotal = $900,000 )
2019	2019	Tourette Association of America Inc.	42-40 Bell Blvd Ste 205	Bayside	NY	11361	QUEENS	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	1	7/14/2019	NEW	$900,000
														Subtotal = $900,000

Grand Total All Awards = $4,699,752

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Award Information

The Tourette Association of America offers evidence-based informational programs and develops/disseminates resources on recognition, diagnosis, and management of TS.

Award Number: NU38DD000001

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

PERIOD OF PERFORMANCE START DATE: 09/01/2019

PERIOD OF PERFORMANCE END DATE: 08/31/2024

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