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Congenital Heart Defects Surveillance across Time and Regions (CHD STAR)

Award Number: NU01DD000055
ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)
OPDIV: CDC
AWARD CLASS: DISCRETIONARY
AWARD ACTIVITY TYPE: HEALTH SERVICES
PERIOD OF PERFORMANCE START DATE: 09/30/2024
PERIOD OF PERFORMANCE END DATE: 09/29/2029

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Congenital Heart Defects Surveillance across Time and Regions (CHD STAR) - The purpose of the proposed project is to develop population-based surveillance of 0-64-year-olds with congenital heart defects (CHDs) living in New York State with one or more healthcare encounters between 2021-2023 to examine descriptive epidemiology, age-specific mortality, healthcare utilization, and respiratory illnesses and immunizations, overall and with respect to race, ethnicity and socioeconomic status. The New York State Department of Health (NYSDOH) plans to build on its existing CHD surveillance framework comprised of records from clinics, hospital inpatient and outpatient data, Medicaid data, Birth Defects Registry data and New York State and New York City Vital Records by adding new data sources (National Death Index, New York State Immunization Information System, New York Citywide Immunization Registry). We plan to geocode residential address information to link to census data to collect census tract-level demographic and socioeconomic status indicators. We also intend to validate 200-300 cases to aid in the development of an appropriate machine learning algorithm. NYSDOH expects to achieve the following outcomes by the end of the project period: • Improved knowledge about the characteristics of individuals with CHD identified from multiple data sources • Improved understanding of: o age-specific mortality in individuals with CHD o healthcare use, comorbidities, and outcomes of individuals with CHD o health equity among individuals with CHD o racial, ethnic, and socioeconomic patterns in healthcare use and long-term outcomes in individuals with CHD o Respiratory viruses (including COVID-19, influenza, and RSV) and immunizations among individuals with CHD o healthcare use during the COVID-19 pandemic among individuals with CHD o the potential impact of state and national healthcare policies on individuals with CHD • Increased awareness among stakeholders of nationwide CHD issues


Issue Date FY	Funding FY	Legal Entity Name	Legal Entity Address	Legal Entity City	Legal Entity State	Legal Entity Zip Code	Legal Entity COUNTY	Legal Entity COUNTRY	Assistance Listing	Award Code	Budget Year	Action Date	Action Type	Action Amount

Issue Date FY: 2025 ( Subtotal = $500,000 )
2025	2025	HEALTH RESEARCH, INC.	150 BROADWAY STE 280	MENANDS	NY	12204	ALBANY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	7/20/2025	NON-COMPETING CONTINUATION	$500,000
2025	2024	HEALTH RESEARCH, INC.	150 BROADWAY STE 280	MENANDS	NY	12204	ALBANY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	2	7/20/2025	NON-COMPETING CONTINUATION	$0
														Subtotal = $500,000

Issue Date FY: 2024 ( Subtotal = $500,000 )
2024	2024	HEALTH RESEARCH, INC.	150 BROADWAY STE 280	MENANDS	NY	12204	ALBANY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	00	1	8/5/2024	NEW	$500,000
2024	2024	HEALTH RESEARCH, INC.	150 BROADWAY STE 280	MENANDS	NY	12204	ALBANY	USA	Birth Defects and Developmental Disabilities - Prevention and Surveillance	01	1	9/27/2024	ADMINISTRATIVE SUPPLEMENT ( + OR - ) (DISCRETIONARY OR BLOCK AWARDS)	$0
														Subtotal = $500,000

Grand Total All Awards = $1,000,000

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Congenital Heart Defects Surveillance across Time and Regions (CHD STAR)

Award Number: NU01DD000055

ORGANIZATION: NATIONAL CENTER ON BIRTH DEFECTS AND DEVELOPMENTAL DISABILITIES (NCBDDD)

OPDIV: CDC

AWARD CLASS: DISCRETIONARY

AWARD ACTIVITY TYPE: HEALTH SERVICES

PERIOD OF PERFORMANCE START DATE: 09/30/2024

PERIOD OF PERFORMANCE END DATE: 09/29/2029

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